Chronic pain is often described in the simplest possible terms: persistent pain that lasts beyond the expected period of healing. But that definition barely scratches the surface of what it actually means to live with…
Chronic Disease
Understand chronic diseases, their causes, common symptoms, and effective management strategies to improve long-term health and quality of life.
To the Person Who Does Not Believe in My Illness
To the Person Who Does Not Believe in My Illness There is a particular kind of exhaustion that does not come from symptoms alone, but from being questioned about them. It is the fatigue of…
I’m More Than My Chronic Disease
Identity Beyond a Diagnosis A chronic disease changes how the body works, but it can also start to influence how a person is seen—and sometimes how they begin to see themselves. After a diagnosis, especially…
Things I found help me handle my Fibromyalgia.
Living with fibromyalgia has a way of reshaping how you think about your body, your energy, and even your expectations for a “normal day.” It isn’t just about pain, although pain is often the most…
I’m not going to excuse myself for “OK” days
I’m Not Going to Excuse Myself for “OK” Days There is a subtle kind of pressure that doesn’t always announce itself loudly. It shows up in expectations that every day should be productive, meaningful, optimized,…
Tried to Be a Mother in a Chronic Condition
Introduction Motherhood is often described as demanding even under the best of circumstances, but when chronic illness or chronic pain enters the picture, the experience changes in ways that are difficult to fully explain to…
Ways to Aid Someone with Chronic Disease
Supporting someone living with a chronic disease is not a single act of kindness or a fixed set of tasks. It is an ongoing process of understanding, adapting, and showing up in ways that match…
What or Who I Am the Invisible Intruder – Chronic illness Awareness
By: Dr Alexa James I was something that was wanted to deny the health community once. You told me I was just in your head, I didn’t exist, you felt like freaks who have lost…
My Body Negotiations: Someone With Chronic Disease Negotiations
My Body Negotiations: Someone With Chronic Disease Negotiations Living with a chronic disease is often described in medical terms, but that language only captures part of the experience. The reality is not just biological; it…
Fibromyalgia Weeping for the Suffers Before have a Chronic Disease
I suddenly sat at the end of my bed, like a ton of bricks I hit my chest. My lips tremble, in my throat I feel a lump and before the tears flow, I must…