A Woman To Be Remembered for Fibromyalgia
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A Woman To Be Remembered for Fibromyalgia

The world lost a woman yesterday.A boy lost his grandmother, three people lost their mother and a man lost his wife.This woman was a pistol, tough and strong and a force to be reckoned with.I grew up with her tales of adventure, living overseas while young and newly married, her husband in the military.I learned of a day in 1929 when this girl took a shoebox of money she was saving to the bank, to…

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Unspeakable Pain but Were you Hurt Most?
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Unspeakable Pain but Were you Hurt Most?

There is a book whose title I will not tell, written by an author that will remain unnamed, that everyone in the whole wide world made such a gigantic fuss about. Hollywood even made it into a movie! And all I heard from everyone I knew was to read this book. It is great! Empowered womanhood! You will love it! They all assured me. So I broke down and bought the darn thing in paperback…

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I am getting my Fight Back
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I am getting my Fight Back

Either that or this terrible impatience and frustration and I kinda have to admit, pure anger pouring out of me is the premonition of a flare. But I have to say all I do is look around at the wreckage that is my life and get really pissed off. The dust bunnies are having babies, getting my carpet cleaned has only made it dirtier, not that I ever vacuum. The laundry needs to be done,…

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My Experience in the Gupta Fibromyalgia Recovery Program
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My Experience in the Gupta Fibromyalgia Recovery Program

Causes of FM/CFS: Scientific Basis for the Gupta Program The premise of the Gupta program is that fibromyalgia (FM) and chronic fatigue syndrome (CFS/ME) are caused by abnormalities in the functioning of brain structures that process physical and emotional threats to the body. However, connections in the brain are not fixed and can be rewired. Neuroscientists call this process “neuroplasticity”. The program was created by Ashok Gupta, who suffered from ME/CFS himself, but has since…

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Learning how to manage one day at a time
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Learning how to manage one day at a time

Part I: From Onset to Diagnosis For Fibromyalgia Awareness Month, I wanted to share my illness journey here on the blog. My story starts eight years ago. It wasn’t a climactic beginning. It was just achy low back pain that got worse the longer I sat writing my M.A. thesis. It seemed like a common enough problem to have, except for the fact that I was 23. The nurse told me to take ibuprofen 24/7 and…

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Mindfulness Meditation for Fibromyalgia and Chronic Pain
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Mindfulness Meditation for Fibromyalgia and Chronic Pain

Meditation is a way to practice being present. According to Jon Kabat-Zinn, a pioneer in the field of meditation and medicine, meditation is a practice of cultivating mindfulness, which means “paying attention, on purpose, in the present moment, non-judgmentally.” For this post, I wanted to look at some recent research on mindfulness meditation programs involving participants with chronic pain. The purpose of these studies was to assess whether mindfulness can lower pain, reduce depression, and improve…

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Fibromyalgia: Living with Chronic Pain
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Fibromyalgia: Living with Chronic Pain

“In three words I can sum up everything I’ve learned about life: it goes on”, Robert Frost My friend has become my guru for updates on research regarding pain. I take hope because of her personal struggles with the issues surrounding living with acceptance in lieu of catastrophizing. Daily pain is exhausting, depletes our energy, and leaves us with a sense of hopelessness. Each new symptom (and there are many) can be like taking one…

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Fibromyalgia: pink palms, smooth feet
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Fibromyalgia: pink palms, smooth feet

” The biology of pain is never straightforward, even when it appears to be”, Lorimer Moseley I thought I knew it all: fibromyalgia is a constant hyper-arousal of the central nervous system and all the symptoms that evolve from that disorder. But recently I met with an internist who held my hand’s palms upward and told me she would have known I had fibromyalgia just by looking at my palms which are pink! I have…

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Fibromyalgia After Hip Surgery: A slow process
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Fibromyalgia After Hip Surgery: A slow process

” Patience is a conquering virtue”, Geoffrey Chaucer So, the hip replacement happened almost three weeks ago. I had hoped that when I took my first step post-operatively I would not have pain. So many people told me that would happen. I should have known better. Of course, there is still pain. It is too soon for me to know the nature of it. Is it fibromyalgia? The scar? The hip itself? I thought I…

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Fibromyalgia: The body holding on to past trauma
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Fibromyalgia: The body holding on to past trauma

“The traumatic moment becomes encoded in an abnormal form of memory,  which breaks spontaneously into consciousness, both as flashbacks during waking states and as traumatic nightmares during sleep”, Judith Lewis Herman Trapped in our psyche, past traumas wind themselves into the body and present as a multitude of physical symptoms. Pain, extreme crushing fatigue, intestinal difficulties, severe itching, rashes, tingling of limbs- the list seems endless. We seem not able to control our anxiety about when…

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