Fibromyalgia and Chronic Fatigue: Medically Unexplained Symptoms (MUS)
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Fibromyalgia and Chronic Fatigue: Medically Unexplained Symptoms (MUS)

“Open your heart to your suffering”, Toni Bernhard There can be little doubt that those of us with fibromyalgia/chronic fatigue have challenges that have forced us to live life differently than those who have ‘health privilege’. Often thought of as malingering, hypochondriac, weak, attention-seeking, depressed people we often live in quiet desperation. By now we recognize that we have developed these conditions because of an over-stimulated nervous system that cannot sustain itself in a healthy manner…

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I’m 22 and considering getting a cane for days when my Fibromyalgia Flares up
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I’m 22 and considering getting a cane for days when my Fibromyalgia Flares up

How do I be confident using the cane in public when I look like an otherwise healthy, able-bodied person? I can’t give you a direct definite answer to your question. But I will share a couple of things with you. When my oldest daughter was 13 she had surgery for scoliosis. She walked back to the surgery suite turning back, smiling and waving. Totally secure in what she was doing. 13 1/2 hours later they…

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Is Central Sensitization the same as Fibromyalgia?
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Is Central Sensitization the same as Fibromyalgia?

Let’s remember that despite all of our great science, we don’t fully understand either central sensitization or fibromyalgia. So the question is cute but unanswerable. Central sensitization means that there is altered processing of sensation in the spinal cord and brain. Imagine you have an mp3 player and you plug it into an amplifier and then to some speakers. The mp3 player is like the tiny signals coming **constantly** from the nerves that touch all…

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If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?
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If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?

I have Fibromyalgia. My father drank heavily in the 1960s and both my parents smoked tobacco when I was conceived. As a child, I frequently had strep throat, bronchitis, and even pneumonia. Even at 2 two years old I remember being inside the incubator seeing the outline of my Mom and my uncle who came in to visit. My teeth are stained from taking the antibiotic, Tetracycline as a young child. As I understand it…

If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro? Read More
What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?
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What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

You know this is the craziest thing I am going to talk about now… I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia. After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was…

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How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?
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How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?

Get your genes mapped. If you have either fibromyalgia or chronic fatigue it is probably most likely due to “Soft Tissue Calcification” which is caused by the body not excreting enough sulfur and phosphorus, which is caused by having genetic mutations like CBS 699 and SUOX mutations. The treatment for these mutations right now is to eat a diet that is very low in sulfur and phosphorus and calcium and vitamin D because these will…

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I find myself taking numerous sick days due to pain from my chronic conditions (fibromyalgia, lupus, thyroid disorders, bipolar)
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I find myself taking numerous sick days due to pain from my chronic conditions (fibromyalgia, lupus, thyroid disorders, bipolar)

It’s hard to address them all at once. I’ll just mention that your issue with panic attacks is probably both psychological as well as physiological. From your wording, it sounds as though you experienced anticipatory anxiety about having a panic attack which then operates in a self-fulfilling prophecy fashion to trigger a panic attack. So there’s an initial cognitive element, which then produces a physiological result. That’s pretty common but also points to the fact…

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What did you discover and how did you heal yourself of Fibromyalgia?
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What did you discover and how did you heal yourself of Fibromyalgia?

What I found in 35,000 hours of work going back to 1978 was that lots of things can start FMS, CFS, and other things; injuries, viruses, bacterial infection, and other things that the body attempts to heal for months and years and such. When it fails at healing the “chronic symptoms” develop. They are secondary symptoms, symptoms caused by failing to heal in 3 to 6 months more or less. Most of these symptoms are…

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Who tests for fibromyalgia?
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Who tests for fibromyalgia?

Traditionally, rheumatologists do the testing to find fibromyalgia. That is because originally, nobody knew what fibromyalgia was and they assumed, as it was linked to pain in joints and muscles, that it should fall under the department of rheumatology. So, in a lot of countries, they are still the ones that do the testing. The way you test to see if you have fibromyalgia is in two stages: the first one is the clinical diagnosis,…

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Have any incidents or trauma in your life that bought on your Fibromyalgia?
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Have any incidents or trauma in your life that bought on your Fibromyalgia?

Story of Fibromyalgia Support Group Warrior ABSOLUTELY!!! December 2009 thru January 2010…..I was employed at a Major grocery retail store’s food warehouse (not naming names, but a little hint would be they are based in Germany…I would LOVE to just name the company and give as many bad reviews to them as I could. I HATE this place …they have NO regard for their employee’s health safety or anything else for that matter…all this place…

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