Fibromyalgia itself is still very much a mystery. Although doctors now have more information, and many doctors now accept it as a “real” issue, we still have a LOT to learn about fibro and chronic pain conditions in general. I personally agree with doctors who believe that fibro is not a condition in and of itself, but the result of other traumas or illnesses. I was diagnosed with fibro in 2002 when I was in…
I don’t know if my way is best, but I’m nearly symptom-free. I take medication and I slowly increased my exercise and activity. The worst: In the spring of 2008, my fibromyalgia (technically fibromyalgia syndrome or FMS) was destroying my life. I couldn’t move without crippling pain. I would move in small increments like going to the bathroom or switching from the bed to the couch. I needed help getting to appointments. If my ride’s car didn’t…
I’m not sure what it is like for other people, but I suspect I have had Fibromyalgia my entire life. As a child, I was always hurting, but I was told it was just “growth spurts“. Things that didn’t seem to hurt other children (rough playing) were excruciating to me. I didn’t have a lot of energy, even when most kids were busy running and playing. I was very sensitive to weather changes and preferred…
I can tell you as someone who was diagnosed with PMR and fibro, most PMR info on the internet isn’t all that accurate. PMR usually affects elderly women, but it’s not so rare for younger folks to have it. And, most who are below the age cut off aren’t even given the blood tests needed to confirm the diagnosis because doctors just think it’s impossible to have PMR at 30, 40, 50 years of age.…
Fibromyalgia was first described in the early 1800s. It was considered a psychiatric ailment for decades. It wasn’t until a study done in 1980 that doctors were able to identify it scientifically. I got sick with it in 1989, a very stressful time in my life. The problem was that even though the year 2000 many, if not most, doctors continued to refer their patients to a mental health professional. Doctors refused to believe it…
I would think that would qualify as an oxymoron, calling Fibromyalgia a “comfort zone”! Since I noticed the first pains, it seems as though I haven’t been comfortable again. I know you mean more on a mental/emotional level, however. I would still be inclined to think not. From what I’ve read, the people I’ve talked to a majority of people with Fibromyalgia were “type A” personalities. Meaning, they were movers, shakers, doers, overachievers, survivalists– we…
On a scale of 1-10, my average daily pain level is a 6 or a 7. All-day. Every single day of my life. It’s always there, and cannot be ignored no matter how engrossed in something I may be. Being in constant pain is exhausting. Fatigue is a huge issue in my life. Unrefreshing sleep is one of the hallmarks of this disease. I sleep about ten hours per night and still wake feeling like…
Exercise helps break the chronic pain cycle associated with fibromyalgia syndrome (FMS) by improving fitness and functional levels, relieving physical and emotional stress, and boosting one’s confidence and self-esteem. While you probably have heard a lot about the benefits of aerobic exercise, you may be wondering about strength training. Women at risk of osteoporosis commonly hear about including strength training activities in an exercise program. Should a person with fibromyalgia perform strength training activities? Is…
Tips for the Warrior Caring for someone with CFS or FM can be a stressful experience. You may take on extra responsibilities, experience financial strain, feel frustrated and resentful at times, lose companionship, face uncertainty about the future, and experience both reduced socializing and sexual difficulties. Even with all the challenges brought by serious illness, there are many ways to take care of yourself. Here are nine to consider. Maintain Your Health This is the…
Improving Communication The stresses brought by serious illness can make good communication difficult. To complicate matters, CFS and FM create the additional challenge of cognitive problems. Here are seven ideas for how to improve communication if you or your partner have CFS or FM. Pick a Good Time and Setting If you have something important to discuss with a significant person in your life, select a time when both of you will be at your…