When and how did you realize your first Fibromyalgia Symptoms?

In 2003 I started to have pain in the muscles of my legs. A doctor’s visit found nothing wrong. As time went on I started to feel pain in other muscles. Down my back, back of my arms, calves, and back of my neck. OTC pain relievers did nothing. Trip to the doctor got narcotics.

They did nothing. Tried muscle relaxers with no results. The pain kept getting steadily worse. The doctor finally me told there was nothing he could do for me. I asked if there might be a doctor anywhere that could help. He said he didn’t think so but he put me in the hospital for some tests.

After 5 days my pain lessened somewhat. He didn’t find anything wrong so I went back to work. Within 1 day my pain level was so high I had to leave work. Called my doctor in tears and begged for help. After saying he didn’t think my pain level was that bad, he recommended that I see a Rheumatologist.

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That doctor asked if I had trouble sleeping. I told him I dreaded going to bed as I knew I would wake up feeling worse than when I went to sleep. I told him it felt like I had been run over by a train. He asked if I had any places that felt sore when they were touched. Yes, two on my shoulder.

He started running his hands down my back and pressing different spots. Each spot was extremely painful. He found 16 different spots that were painful. After asking me several more questions he asked if I had ever heard of fibromyalgia.

No, l said. He explained the symptoms to me and some were things I was going through but didn’t think were related to my pain. I was in tears when I left his office. I knew I could not live the rest of my life in severe pain. He offered no medication or treatment plan except to say try to stay as comfortable as possible.

I headed to the internet. At that time very little was known about fibromyalgia. The word means muscle pain. I lived 5 years in constant pain until I came across a pain reliever that gave me some relief. I went to my regular doctor because I was getting very depressed.

When I started taking the antidepressant, I found more relief. I have been on these two medications for 17 years and on most days my pain level is around 2 or 3. In winter I have more trouble and the rainy weather isn’t so good.

I am of the opinion that they still don’t know what it is or what causes it. The medications they advertise on TV have never worked for me or else had too many side effects. I can tell you if you find a medication or combination that works for you stay with it.

The mix of non-narcotic pain relievers and antidepressants is what works for me consistently. I have tried everything that is recommended for fibro and these are the only two that works for me.

Anyone that has fibromyalgia has my sympathy. Good luck. I found out I can stand a lot more pain than I thought even though I am more pain-sensitive.

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