All these positive Fibromyalgia experiences
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All these positive Fibromyalgia experiences

As I have been opening my mouth more and more about Fibromyalgia, The Crusade, awareness, and the general passion of my life to anyone and everyone that will listen I keep having positive experiences! Where I used to get glazed over expressions of distracted disinterest I am now finding myself bombarded with questions of genuine curiosity. I don’t know if the difference is me or Fibro. No longer mopey and sad-faced as I mumble that…

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The Fibromyalgia Crusade
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The Fibromyalgia Crusade

I am launching THE FIBROMYALGIA CRUSADE! I am a Fibromyalgia patient, not a doctor, scientist, researcher, or Ph.D. I am a real woman living a real-life with a real disease that receives little to no respect or understanding from the world at large. I became ill in 2005 and have devoted the last 5 years of my life to overcome the debilitating and miserable reality that is living with Fibromyalgia. My medical history is complex.…

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How has my marriage survived Fibromyalgia?
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How has my marriage survived Fibromyalgia?

I logged onto Facebook this morning, feeling estranged and isolated from my Fibro family. This weekend absorbed all of me in physical pain and emotional anguish debauchery of lowered Prednisone dosing and all the joys that accompany coming off that drug. Just taking the dogs on a walk this morning picked me up and plopped me right back in the middle of Northern California, about 2007. Pick any month, the weather sucks all the time,…

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I am getting my Fight Back
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I am getting my Fight Back

Either that or this terrible impatience and frustration and I kinda have to admit, pure anger pouring out of me is the premonition of a flare. But I have to say all I do is look around at the wreckage that is my life and get really pissed off. The dust bunnies are having babies, getting my carpet cleaned has only made it dirtier, not that I ever vacuum. The laundry needs to be done,…

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My Experience in the Gupta Fibromyalgia Recovery Program
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My Experience in the Gupta Fibromyalgia Recovery Program

Causes of FM/CFS: Scientific Basis for the Gupta Program The premise of the Gupta program is that fibromyalgia (FM) and chronic fatigue syndrome (CFS/ME) are caused by abnormalities in the functioning of brain structures that process physical and emotional threats to the body. However, connections in the brain are not fixed and can be rewired. Neuroscientists call this process “neuroplasticity”. The program was created by Ashok Gupta, who suffered from ME/CFS himself, but has since…

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Learning how to manage one day at a time
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Learning how to manage one day at a time

Part I: From Onset to Diagnosis For Fibromyalgia Awareness Month, I wanted to share my illness journey here on the blog. My story starts eight years ago. It wasn’t a climactic beginning. It was just achy low back pain that got worse the longer I sat writing my M.A. thesis. It seemed like a common enough problem to have, except for the fact that I was 23. The nurse told me to take ibuprofen 24/7 and…

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Fibromyalgia is often puzzling for some medical professionals who are not familiar with it. So, who do sufferers turn to for treatment?
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Fibromyalgia is often puzzling for some medical professionals who are not familiar with it. So, who do sufferers turn to for treatment?

Like an ‘invisible illness, Fibromyalgia is difficult to diagnose. The symptoms of Fibromyalgia overlap with many other chronic pain conditions, which is why receiving an official diagnosis is often problematic. If you have Fibromyalgia, you will experience widespread pain. This may be felt throughout the entire body or could be worse in certain areas, such as the back or neck. The pain is likely to be prolonged and unpredictable; there will be times when it…

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Fibromyalgia vs My Rest Day
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Fibromyalgia vs My Rest Day

When is the last time scheduled a rest day? I am not talking about spending the day in bed because your chronic illness flared and made leaving it impossible. What I am asking is, when did you last choose a day to relax, give your body a break, and allow yourself to chill out in front of the television for no reason other than you wanted to? I don’t need a rest day The problem…

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Mindfulness Meditation for Fibromyalgia and Chronic Pain
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Mindfulness Meditation for Fibromyalgia and Chronic Pain

Meditation is a way to practice being present. According to Jon Kabat-Zinn, a pioneer in the field of meditation and medicine, meditation is a practice of cultivating mindfulness, which means “paying attention, on purpose, in the present moment, non-judgmentally.” For this post, I wanted to look at some recent research on mindfulness meditation programs involving participants with chronic pain. The purpose of these studies was to assess whether mindfulness can lower pain, reduce depression, and improve…

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FIBROMYALGIA for the Rich Poor and Everyone
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FIBROMYALGIA for the Rich Poor and Everyone

Talk about “coming out”.  Lady Gaga announced she had to enter a hospital and cancel a number of future engagements due to severe body pain and fatigue that has been diagnosed as Fibromyalgia. She was very positive but she had no time schedule as to when she might be able to return to a regular schedule of work. If you have Fibromyalgia or know of someone who has this disease you know that this debilitating…

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