“What’s in a name?”, Shakespeare The nomenclature of Fibromyalgia can be known as: “Central Sensitization”, “Post Traumatic Stress Disorder”, “Cycles of Over-Exertion-Relapse”, and “Chronic Fatigue Disorder”, and now a new term: “Systemic Exertion Intolerance Disorder”- all with the same characteristics. What’s to be done so that we can explain ourselves to others while so many labels of these invisible syndromes abound? In fact, do all these terms mean the same thing? Are they bio–psycho–social in…
Fibromyalgia Conditions
Explore the conditions associated with Fibromyalgia, their symptoms, and how to manage them for improved well-being.
Hypnosis for Fibromyalgia
“With hypnosis, we can help people modulate perceptions in ways that are therapeutically helpful”, David Spiegel For those of us with chronic pain and/or a myriad of other distressing physical and psychological conditions the practice of ‘changing our brains’ through relaxation and exercise regimes can be overwhelming. Mindfulness meditation is one way that we can work with our minds to improve our daily lives, but it takes time and discipline. What if there is a…
Is the cause of fibromyalgia both a nature/nurture conundrum?
” There are many other (besides testosterone) behavior-eliciting hormones fundamental for human well-being, including estrogen and progesterone in females”, Carl Sagan The question arises about why fibromyalgia is more prevalent in highly sensitive women and men. The debate about nature/nurture has not yielded specific answers and for a while, I have thought of it as a moot point. As a nurse/sociologist I have leaned toward the impact of the social environment in early childhood. But,…
“Pulling yourself up by your bootstraps”: struggling with fibromyalgia
” Early in life, I was visited by the bluebird of anxiety”, Woody Allen Anxiety is the root cause of fibromyalgia, particularly at an early age, or even in the womb. So, how is one to overcome the early stages of this deep-seated emotional characteristic that those of us with fibromyalgia struggle with on a day-to-day basis? Even more significant: how do we explain to others that the challenges of life-long anxiety cannot be overcome by…
Letting go: How to live with Fibromyalgia
” To let go is to release the images and emotions, the grudges and fears, the clingings and disappointments of the past that bind our spirit”, Jack Kornfield In the newspaper today there is an editorial written by Jane Brody titled “More specialists explore treating pain without drugs” (The Globe and Mail, L5, September 15, 2017). She cites the conditions that drug-free options for pain can help with, such as fibromyalgia, news of which was…
Fibromyalgia: pink palms, smooth feet
” The biology of pain is never straightforward, even when it appears to be”, Lorimer Moseley I thought I knew it all: fibromyalgia is a constant hyper-arousal of the central nervous system and all the symptoms that evolve from that disorder. But recently I met with an internist who held my hand’s palms upward and told me she would have known I had fibromyalgia just by looking at my palms which are pink! I have…
The twins: Fibromyalgia/ PTSD
“After a traumatic experience, the human system of self-preservation seems to go onto permanent alert, as if the danger might return at any moment”, Judith Lewis Herman In my book almost a decade ago, I wrote about Gulf War syndrome and the similarities between this condition and fibromyalgia. From the terms ‘shell shock’ and ‘Gulf War syndrome’ has emerged the contemporary ‘Post–Traumatic Stress Disorder’ label. We have now landed firmly on the relationship between these…
Fibromyalgia After Hip Surgery: A slow process
” Patience is a conquering virtue”, Geoffrey Chaucer So, the hip replacement happened almost three weeks ago. I had hoped that when I took my first step post-operatively I would not have pain. So many people told me that would happen. I should have known better. Of course, there is still pain. It is too soon for me to know the nature of it. Is it fibromyalgia? The scar? The hip itself? I thought I…
Fibromyalgia: The body holding on to past trauma
“The traumatic moment becomes encoded in an abnormal form of memory, which breaks spontaneously into consciousness, both as flashbacks during waking states and as traumatic nightmares during sleep”, Judith Lewis Herman Trapped in our psyche, past traumas wind themselves into the body and present as a multitude of physical symptoms. Pain, extreme crushing fatigue, intestinal difficulties, severe itching, rashes, tingling of limbs- the list seems endless. We seem not able to control our anxiety about when…
Fibromyalgia and Neuropathic Pain
“Pain is real when you get other people to believe in it”, Naomi Wolf As I have frequently written there are two kinds of pain: nociceptive and neuropathic. Those of us with fibromyalgia suffer from the latter. It is the most difficult to live with as it is long-term damage to the nervous system that has become chronic. It cannot be treated with opioids long-term as it only gives temporary relief. Many find some degree…