There are times with Fibromyalgia that I exceed my walking limits. It is actually difficult sometimes because the limit changes. It can be a short distance one day and a decent distance the next. There was a time when I had to run all over campus to get professors to sign my thesis to get it processed. I ran around everywhere looking for everything. Too much. I was in immense pain. I would sit down…
Chronic Pain
A comprehensive guide on chronic pain, its causes, symptoms, and effective management strategies to improve your quality of life.
Fibromyalgia and Opiates for pain: Helpful or hindering?
There has been a study published in the Journal of Pain from Australia that might suggest opiates may cause increased sensitivity in some types of pain. The study had the patients who have chronic pain and hyperalgesia, which is that intense response to pain, we also see in fibromyalgia. They were taking methadone and morphine for the study. Hyperalgesia is an increased pain response such that more pain is felt than dictated by the stimulus…
So you have a chronic illness. Is that a disability?
If it means significant restrictions to your daily activities, then, according to medical and government guidelines, yes, you have a disability. This may challenge the ability stereotypes you might have absorbed from the media, where disability is usually linked to the need to use a wheelchair because of a spinal cord injury or limb impairment. This might get you wondering about what exactly the definition of disability is, how do we usually understand it and…
Learning about Disability
I’m taking a disability studies class this term as part of my social work program. I study part-time, online. I thought I would post some of my reflections on reading articles for the class. People living with FM and CFS/ME don’t always think of themselves as ‘disabled’, but the way the world is organized and the way these conditions affect our bodies certainly mean we do live with a disability. Reflections on Eli Clare’s (2001) Stolen…
How do fibromyalgia and chronic illness upend your life?
You’re sitting in the doctor’s office, being told you have an incurable illness. Maybe you have to leave your career, or pull back on your workload, with set accommodations. You can’t live up to being the involved wife, parent, sister, or daughter you planned on being. Travel becomes difficult, athletic ability falls off, and favorite hobbies or pastimes become more challenging. But mostly you just don’t feel like you. A period of grief ensues over…
A Woman To Be Remembered for Fibromyalgia
The world lost a woman yesterday.A boy lost his grandmother, three people lost their mother and a man lost his wife.This woman was a pistol, tough and strong and a force to be reckoned with.I grew up with her tales of adventure, living overseas while young and newly married, her husband in the military.I learned of a day in 1929 when this girl took a shoebox of money she was saving to the bank, to…
Unspeakable Pain but Were you Hurt Most?
There is a book whose title I will not tell, written by an author that will remain unnamed, that everyone in the whole wide world made such a gigantic fuss about. Hollywood even made it into a movie! And all I heard from everyone I knew was to read this book. It is great! Empowered womanhood! You will love it! They all assured me. So I broke down and bought the darn thing in paperback…
I am getting my Fight Back
Either that or this terrible impatience and frustration and I kinda have to admit, pure anger pouring out of me is the premonition of a flare. But I have to say all I do is look around at the wreckage that is my life and get really pissed off. The dust bunnies are having babies, getting my carpet cleaned has only made it dirtier, not that I ever vacuum. The laundry needs to be done,…
Learning how to manage one day at a time
Part I: From Onset to Diagnosis For Fibromyalgia Awareness Month, I wanted to share my illness journey here on the blog. My story starts eight years ago. It wasn’t a climactic beginning. It was just achy low back pain that got worse the longer I sat writing my M.A. thesis. It seemed like a common enough problem to have, except for the fact that I was 23. The nurse told me to take ibuprofen 24/7 and…
Fibromyalgia and celiac disease are two debilitating conditions that prove to be extremely difficult to live with
Fibromyalgia and celiac disease are two debilitating conditions that prove to be extremely difficult to live with. Some symptoms of both conditions overlap and are very similar. In this blog, we look at the connections between the two conditions and how they may be related to one another. Fibromyalgia is a complex, long-term chronic condition with a multitude of different symptoms, including widespread pain all over the body, and without a single known cause.Many people…