Begin to Put your Wellbeing First for Sufferers with Cystic Fibrosis
By: Researcher Taymur
You wouldn’t know that by looking at me, I have cystic fibrosis. I have an incurable disease and the condition affects my lungs and pancreas, making it difficult to breathe and gain weight.
I’ve been brought up to be mindful of my safety, which is one of my parents ‘ best things about me. When I was ready for college, I had eight years of separate sorting of my regular pill cases. In high school I would go to the appointments of doctors alone sometimes, so I had concerns not for my mom, but for me. I would survive on my own, finally.
Yet I knew I was close to home was of value to my health when it came to choose a school. It was 45 minutes from my parents ‘ house and about 20 minutes away from John Hopkins hospital to select Towson University in Maryland. My freedom was far enough but close enough to my family when I wanted it. And I did it a couple of times.
I was very stubborn before. I dismissed it as I slowly got sicker at school. I was an educational advisor, and I wouldn’t let my disability slow me down by doing all I had to do. I wanted the entire experience of college.
I realized I was ill by the end of my sophomore year, but I had too many undertakings to put my wellbeing first. In the end, I had a job as a student news editor, and a social life, of course.
My mother had to rush me to the pediatric emergency room of Johns Hopkins following my final last year. After the study, I can hardly return to my room in the dorm. I have significantly decreased my lung function. Even to take the final, I couldn’t believe I would have pulled out the stamina.
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One of the most difficult things about travel to school is to stick to your wellbeing as someone with cystic fibrosis. But it’s one of the biggest things as well. You should keep your medicine up to date and visit your doctor regularly for cystic fibrosis. You must also spend time relaxing. I still have a hard time knowing my boundaries at almost 30 years of age.
I would like to have been more open to my cystic fibrosis, if so I look back on my years at Towson. I have always been ashamed because I thought my peers could not understand, any time I had to refuse a social event for my illness. But now I know my first wellbeing. I’d like to save my life from an incident or two. It looks like the best option, right?
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