Fibromyalgia: Living on high alert
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Fibromyalgia: Living on high alert

“We don’t see things as they are, we see them as we are”, Anaïs Nin One of the common sayings in Mindfulness Meditation is that thoughts are not facts. In chronic pain clinics, we are told that hurt does not necessarily mean harm. B.K.S Iyengar, a yoga master, says to think light and feel light. But what are we to do when we are in a state of high arousal, waiting for disaster to fall, whether…

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Trigger warnings for the fibromyalgia mind
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Trigger warnings for the fibromyalgia mind

“Courage is resistance to fear, mastery of fear-not absence of fear” , Mark Twain Neuroscientists can now tell us amazing things about the brain, they are the experts on the nervous system. The argument that there is or is not a ‘mind’ is no longer relevant. A mind without a brain and a brain without a nervous system are not feasible. It is the mind that alerts us to fear, which may or not be…

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Fibromyalgia: “what’s that smell”?
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Fibromyalgia: “what’s that smell”?

“For the sense of smell, almost more than any other, has the power to recall memories and it is a pity that we use it so little”, Rachel Carson Many of us with fibromyalgia are extremely sensitive to environmental stimulation such as loud noises, dogs barking, loud music, bright lights, frightening images, strong tastes, and even certain smells which can be very provocative. While some smells are deliciously pleasant to many the same ones may not be ones…

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Writing about Fibromyalgia: The psychological and physiological effects
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Writing about Fibromyalgia: The psychological and physiological effects

“There is no greater agony than bearing an untold story inside you”, Maya Angelou A very interesting interview a while ago on CBC Radio with Michael Enright as host. Dr. Suzanne Koven, who is a Massachusetts General Hospital Writer-in-Residence and a primary care doctor,  writes, teaches, and speaks about the healing power of story writing. She was Enright’s guest. It has allowed me to ponder upon my own need to write about fibromyalgia and in turn for others to comment…

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Fibromyalgia: Living with Chronic Pain
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Fibromyalgia: Living with Chronic Pain

“In three words I can sum up everything I’ve learned about life: it goes on”, Robert Frost My friend has become my guru for updates on research regarding pain. I take hope because of her personal struggles with the issues surrounding living with acceptance in lieu of catastrophizing. Daily pain is exhausting, depletes our energy, and leaves us with a sense of hopelessness. Each new symptom (and there are many) can be like taking one…

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Fibromyalgia and Brain Fog: Stop, Breathe & Think
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Fibromyalgia and Brain Fog: Stop, Breathe & Think

“My own brain is to me the most unaccountable of machinery-always buzzing, humming, soaring roaring diving, and then buried in mud”, Virginia Woolf To live a life in a state of high anxiety, boarding on panic is common among those of us with fibromyalgia. We anticipate pain, fatigue, muddled thoughts, and a myriad of other symptoms almost every waking (and sleeping!) hour. It has become a habit that often seems unable to be broken and…

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Fibromyalgia and unnecessary tests: more care is not better care
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Fibromyalgia and unnecessary tests: more care is not better care

“He’s (sic) the best physician that knows the worthlessness of most medicines”, Benjamin Franklin This is not a blog about doctor bashing. I have been so fortunate for many decades to have a physician who does not suggest unnecessary tests and is sympathetic, highly intelligent, and comforting. Rather it is about the run around that many people with chronic pain experience as they ‘doctor shop’. Physicians do not want their patients to suffer. However, often they…

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Fibromyalgia and Nurses
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Fibromyalgia and Nurses

“Women never have a half-hour in all their lives (excepting before or after anybody is up in the house) that they can call their own, without fear of offending or of hurting someone”, Florence Nightingale Florence Nightingale is famous as the woman who developed modern nursing. From May 6-12th we celebrate ‘National Nurses Week’ in honor of her birthday which was on May 12th, 1820. However, her birthday is now also celebrated as ‘International Chronic…

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I have Fibromyalgia again
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I have Fibromyalgia again

I have had Fibromyalgia since mid-2006, acquired during a long bout with a viral infection in my central nervous system. I used Neurontin, Percocet, Cymbalta, and Lyrica in the following 4 years to manage my pain. While on Lyrica I slept a lot and ballooned up like a, well, balloon! I did get off of Percocet, though, and had no pain. Despite that wonderful result, I went off Lyrica and back to Neurontin, using Tramadol…

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Fibromyalgia and the tendency toward anxiety
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Fibromyalgia and the tendency toward anxiety

“When anxious people anticipate something bad about to happen- such as being confronted with creepy pictures of snakes or spiders- their right frontal insulas go into overdrive”, Blakeslee and Blakeslee Many of us with fibromyalgia can remember childhood as the beginning of a lifetime of fear, and anxiety. Since there might have been a significant childhood episode that triggered this dis-ease called fibromyalgia, it stayed with us while other troublesome events in our lives piled…

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