Fibromyalgia pain is unique due to its severity, complexity, and multiple systems involved.
If you have fibromyalgia, you know that chronic pain is just one of the myriad of symptoms present within the fibro body at any one time.
See, there can be multiple causes to a fibromyalgia headache for example, although the pain itself occurs in the “fashion” we call fibromyalgia pain.
It doesn’t matter if the headache started as neck or scapular-thoracic pain OR if it was perpetrated by weather or exposure to some chemical toxins in our environment. The pain is unique to fibromyalgia.
The stress pain that we fibro bodies feel is much the same when we are referring to fibromyalgia pain. It doesn’t matter if the stress that caused your nervous system to continually fire was from a negative or a positive experience.
The fibro body simply has a more difficult time regulating down the “fight or flight” reflex.
That continual stress on the body wreaks havoc on our pain sensory system and therein starts the cycle of chronic fibromyalgia pain.
We know there are various causes to developing fibromyalgia and chronic pain fibromyalgia, but I do believe that many people simply have a greater propensity to developing fibromyalgia.
In fact, it has been shown that over 33% of fibro suffers are genetically disposed to it. If you are like me, and your symptoms started at a young age, I am glad you are here.
I understand this condition, living with it, working with it, and helping others to attain a better quality of life, despite the complexity of fibromyalgia and its primary co-conditions.
The pain and symptoms are never just in one area of the body. It is certainly not ALL in your “headache”. It is not merely in your “frozen shoulder” or “restless legs”.
No, the fibromyalgia pain that a fibro person experiences is multi-system and that is why we believe in a multi-faceted approach to a better quality of life while living with not only fibromyalgia but related conditions as well.
Myofascial pain is also related to fibromyalgia and it is not uncommon to have both.
The extremities are a common area for fibromyalgia pain. Yet it is helpful to distinguish between other forms of pain in the extremities.
Arthritis and/or nerve pain are associated with extremity pain but fibromyalgia pain is unique in its ability to wax and wane, yet not always in accordance with a weather pattern or stress.
It might simply happen that you wake up one day and the same hand that was working well and flexible yesterday may be tight, stiff, and/or burning.
It might be difficult to open jars, tie shoes or put on clothing. Hand pain can radiate into the forearm and elbows where there is a greater propensity for tenderness and pain simply due to tender points around the elbow region.
Trigger points around the shoulder can also radiate pain into the forearms and hands. You may have restlessness in your hands where you feel the “need” to tap or move your hands and/or fingers.
Try using copper compression gloves. The copper used in compression wear and clothing has been shown to reduce pain; it’s worth a try!! I use copper compression wear, clothing, and gloves. I think it’s a good investment for long-term use.
Try not to get too concerned when pain is “waxing”; I know, that’s easier said than done. But I have personally experienced almost debilitating hand pain during a period of time many years ago. I remember talking to my D.C. about it, and my heightened concern about not being able to use my hands the way I needed to.
That can be scary and disconcerting. The same goes for pain in the legs and feet. See, every area of the fibro body has a propensity to wax and wane in accordance to absolutely nothing…. but especially in the extremities and/or around joints and tender points of the fibro body.
Due to trigger points, fascia constriction, and/or nerve-related pain in the feet, you might feel burning in both the top and bottom of the feet.
Myofascial Release can be helpful when this pain is due to inactivity or constriction from sitting, lying, or being in one position for too long; however, this type of work will vary regarding tolerance. Refer to the “myofascial release” article link at bottom of this page.
Another remedy I’ve found (and use) is copper wear compression ankle sleeves. This foot/ankle sleeve fits gently over the foot and the copper is healing. It provides very slight hugging compression support for diminished foot pain and improved foot structure.
Do you have restless legs? What about restless feet? There are various causes for restless and painful legs and feet. Nerve-related pain, fascia constriction, or mineral deficiency are some common ones with fibromyalgia.
Fibromyalgia Pain in The Upper Body
We have an entire article dedicated to upper back pain here on the website and with fibromyalgia, that is pretty much a given. Burning scapular-thoracic pain is one of the most unrelenting types of fibromyalgia pain.
What about pain and tightness in the clavicle area below your neckline? Tightness around the sternum is common as there are many trigger points in this area around the subclavius and pectoralis muscles.
The only consideration will be if the pain is coming from another source unrelated to fibromyalgia. It can be difficult to determine this but when other conditions are ruled out, you can bet on fibromyalgia and/or myofascial pain being the cause.
NOTE: A feeling of heaviness in the upper body can be due to chronic fatigue syndrome as well, and can be associated with an inability to maintain an upright position for extended periods of time.
Fluctuating blood pressure, heart palpitations, and a feeling of constriction in the chest are common with both fibromyalgia and chronic fatigue syndrome.
Be careful not to exacerbate pain with shallow breathing. I often say that people with chronic illness tend to be shallow breathers and this can intensify tightness and even a choking feeling in the chest and throat area.
Sitting too long at the computer or watching television can contribute to tightness in the armpits and pectoralis muscles.
If you have Fibrocystic Breast Disease (FBD), you may have waxing and waning of pain and tenderness not associated with tender points but more so with lymphatic congestion and constriction. This pain is closely associated with stress or repetitive motion in the arms and/or hands.
For example, if you get a regular massage for your fibromyalgia pain, but you ever find yourself becoming less tolerant to massage that once felt good, you might need to change your approach, technique, or even avoid body massage for a period of time.
It might happen that when you go back to it, that it is helpful again. At any rate, that is the “nature” of fibromyalgia. Waxing, waning and the unpredictability of symptoms can be most daunting when living with fibromyalgia.
Fibromyalgia Pain In The Lower Body (Legs, Knees, & Hips)
Another common area for pain with fibromyalgia is in the legs and knees. The interesting thing is that the first “pain zones” often related by a patient when they recall back to the first signs of fibromyalgia are in the head and upper body.
Leg pain comes readily after, likely due to the potential for trigger points within layers of muscle in the lower body.
Everything works intimately together in the lower quadrant of the fibro body. The hip bone really is “connected” to the knee bone for instance when it comes to radiating pain and trigger points, due to constriction, tightness, and/or myofascial pain. Both sitting and standing for extended periods of time are not recommended when we have fibromyalgia pain.
If you have a job where you are sitting, try to take breaks, be assertive when possible and also refer to the “pain in the butt” exercises I show on the Fibro Fit People page on Facebook. (these are some simple exercises to perform in between sitting to help loosen and avoid increased propensity to pain and tightness.
Otherwise known as “FG’s side to side exercises”, because much of what we do during the day is in a “forward” motion, such as walking and sitting.
Creating a greater range of motion is more appropriate for those who find conventional stretching of the lower body difficult due to fibromyalgia pain and/or other factors like arthritis.
Another consideration is “Activities of Daily Living (ADLs)”. ADLs are different from structured exercise and can also be an area where injury or increased pain can easily occur. For instance, you might be going along feeling pretty decent, all things considered, and then you have to lean down to clean the bathtub or mop the floor.
All of a sudden, you might realize that these things are more difficult than before. If some activity or chore is too difficult without undue strain, we need to ask for assistance where possible.
We have an entire article here on the site dedicated to headaches and chronic migraine. This can be one of the most debilitating pain areas for a person with fibromyalgia. As I like to say, “this is where we think, express, and interact with the world around us”.
If you have chronic head pain or migraine, then you know pain. The potential for trigger points in the upper back/scapular area can easily turn pain in the upper back into a migraine within a short period of time.
Stressors, exposure to environmental toxins, sleeping position, seasonal allergies, food allergies, and sinus or jaw (TMJ) pain can all increase pain within the fibro body to the point of debilitation.
Again, because there is nothing worse than trying to think, work at a job, or enjoy the simple things in life when head pain is pounding and radiating into your head, skull, and face. It makes it even more challenging to carry on a conversation or be social.
Having had chronic migraine since the age of 9, I surely get it, and there are some things that we just cannot control. But throughout the website, we focus on the many variables that can contribute to headaches and other areas of fibromyalgia pain and the areas where we can be more proactive to at least lessen or decrease the severity of pain.
With fibromyalgia, there can be a few different root causes, and in addition, there can be a dysfunction in the hypothalamus, pituitary, and adrenal functions.
And although female hormones or lack thereof can also exacerbate temperature imbalance and hot flashes, we are talking more about the everyday dysregulation in fibromyalgia itself.
Too much stress on the adrenals can increase adrenaline while also increasing temperature sensitivity. The endocrine system is also affected by toxins in the environment, and when exposed to various things can cause the body to react with temperature dysregulation.
During or after toxic exposure, your extremities can become very cold. This is also why people with fibromyalgia often say it feels like living with flu symptoms 24/7. There could also be an imbalance in the thyroid or the presence of thyroid antibodies.
One day you might feel like you are sweating too much and yet another you could feel cold all day long at the same temperature.
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