I have lived with Fibromyalgia for 30 years.
The answers to this question are true and help to explain some of the new symptoms I’m experiencing. For example, when I stand up, I’m dizzy and have to be very careful or I walk into walls or furniture or trip and fall down.
Everyone has been blaming this on the medication I take for depression and pain but when I look them up, dizziness is not a side effect. I’ve taken some of them for years before the dizziness started.
I used to be smart. This is perhaps the worst thing that has happened.
Before FM, I started a home business, raised our two children, one of whom has significant mental health issues, never gave up on my marriage, and volunteered in our community.
Now I sit at home all day and write – until the fibro fog gets so bad that I can’t read the words on the screen. They aren’t blurry, they jump around and one line will appear on top of another, or the letters are offset enough that it feels like my brain is failing.
Around 3:00 every afternoon I can feel myself get dumber. I can’t remember words or have a conversation with someone because I can’t remember what was said three seconds ago.
So, I have learned to adjust. The best time of the day for me is 10:00 – 3:00. I use that time wisely. That is when I do my writing (and editing) or read something important that I need to understand.
I always have a notebook with me to write down ideas for my next novel, when I’m supposed to meet someone, or which book I’m reading next. This really helps because once I have it written it down, I don’t need to remember it anymore. It frees up space in my brain. I know to check my notebook frequently.
I am planning to write a book about fibromyalgia in the fall (2019). It will be filled with people’s experiences and input, and all of the things I have learned in 30 years. If you would like to fill out a short survey or be interviewed about your experience with fibromyalgia,
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