6 things I would like you to know about Fibromyalgia
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6 things I would like you to know about Fibromyalgia

There are a lot of things I wish people understood about Fibromyalgia I would like to share for fibromyalgia awareness. Here are a few… We have ambition. Just like all the ‘normals’ out there we have ambition. Career goals. Things we desired to do with our lives. It is just the syndrome with the pain, fatigue, and comorbid conditions interfering with that reality. We ended up making compromises and getting other jobs. Or we were…

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How much fibromyalgia awareness is out there?
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How much fibromyalgia awareness is out there?

There is this impression that a lot of people do not know about Fibromyalgia or understand it in the general public. I wrote an article in 2020 about How Much Awareness is Out There that suggested there was more than we think. I am going to post the reprint on that. I assume there is even more awareness now via all the 800 drug company commercials. Click Here to Visit the Store and find Much…

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Fibromyalgia: Expectations vs reality
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Fibromyalgia: Expectations vs reality

Back in the day. Like 20 years back in the day I had some expectations about what fibromyalgia is and then I learned the reality of what fibromyalgia is. We all have expectations of what it will be and mean for our lives in the beginning. Even before we are diagnosed since that can take 5 to 10 years. And sometimes we believe it will be horrible forever. And others, like me, believed it wouldn’t…

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Adolescents with fibromyalgia who are physically active report lower levels of pain and disability
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Adolescents with fibromyalgia who are physically active report lower levels of pain and disability

Adolescents with fibromyalgia who are physically active report lower levels of pain and disability, according to findings of a multicenter study published in The Journal of Pain, published by the American Pain Society. Led by researchers at Cincinnati Children’s Hospital, this study is the first to use actigraphy-based physical activity monitoring to measure the relationship between pain, perceived functional impairment, and depressive symptoms in adolescents with juvenile primary fibromyalgia syndrome (JPFS). For the research, 104…

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Study probes obesity link to fibromyalgia
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Study probes obesity link to fibromyalgia

Afflicting up to 5 percent of the U.S. population, mostly women, fibromyalgia is characterized by widespread pain and a range of function problems. A new study in The Journal of Pain reports there is a close association between obesity and disability in fibromyalgia patients. The purpose of the study, conducted by University of Utah researchers, was to evaluate the relationship between fibromyalgia and obesity. They hypothesized that obesity significantly adds to the disease and disability…

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Lady Gaga and fibromyalgia
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Lady Gaga and fibromyalgia

Lady Gaga has opened up about having Fibromyalgia and is going to be candid about it in her documentary. Fibromyalgia is a syndrome that needs this sort of representation. Someone visible is seen to be struggling with it and getting extensive treatment to manage the pain. It isn’t the sort of syndrome that gets much attention. So I am proud of her for putting that out there. And those of us who advocate for awareness…

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Recent treatment recommendations for Fibromyalgia
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Recent treatment recommendations for Fibromyalgia

Recent talks at the American College of Rheumatology Annual Meeting looked at overall treatment protocols we should see. The two presentations: Daniel J. Clauw, MD, a rheumatologist and professor of anesthesiology and medicine, and director of the Chronic Pain and Fatigue Research Center at the University of Michigan focused on the nature of pain experienced by patients with fibromyalgia and how clinicians can treat it. Carmen E Gota, MD, of the Cleveland Clinic, stressed the importance of exercise…

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Long-term study on fibromyalgia severity
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Long-term study on fibromyalgia severity

I came across an interesting long-term study in Finland on Fibromyalgia spanning 26 years published in the journal of Clinical Rheumatology. The severity of symptoms persists for decades in a fibromyalgia-a 26-year follow-up study. There has been this sort of rumor that fibromyalgia improves with the time that I have heard several times and so this study is interesting. Also, there is the question of whether we can go into remission or not. Either way, we…

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When you have fibromyalgia
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When you have fibromyalgia

It is fibromyalgia awareness month once again. Remember fibromyalgia awareness day falls on May 12th. I’d like to start the month with a little fibromyalgia humor. Sadly, it is also all true. When you have fibromyalgia Sleep is the delicious nectar of the gods that is denied you Click Here to Visit the Store and find Much More…. Too much sleep? That’s a flare The last time you had no pain was before the Big Bang Doing…

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A Not-to-Do List for living with Fibromyalgia
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A Not-to-Do List for living with Fibromyalgia

I recently began reading Toni Bernhard’s wonderful book How to Live Well with Chronic Illness.  I was inspired to write this post after reading a section in her book where she outlines her ‘not-to-do list’. Bernhard rightly points out that it takes a great deal of self-discipline to stick within the restrictions imposed on your body by chronic illness.  In my own case, I’ve found that most of my self-growth has come from recognizing, accepting,…

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