Living with chronic illness means carrying a truth that is often invisible to the world. It means waking up in pain, navigating unpredictable symptoms, and silently adjusting to limitations that others may never see. And yet, when we try to express that truth—whether through conversation, writing, or simply answering “how are you?” honestly—we’re often met with discomfort, dismissal, or even accusations of being negative. So the question arises: Am I being ‘negative’ by admitting my…
Complex Regional Pain Syndrome
Explore Complex Regional Pain Syndrome (CRPS), its symptoms, causes, and treatment options to manage chronic pain and improve quality of life.
How Selma Blair and Her Cool Canes Are Quietly Revolutionizing Disability Acceptance
How Selma Blair and Her Cool Canes Support Disability Acceptance Selma Blair, a celebrated actress known for her roles in film and television, has become a powerful figure in disability advocacy—not just through her words but through her visible and stylish use of mobility aids. Diagnosed with multiple sclerosis (MS), Blair has embraced her journey with honesty and grace, challenging long-standing stereotypes about what it means to live with a disability. Perhaps one of the…
Bruised But Breathing: Because of Trauma, I Often Hate My Body – And That’s My Truth
Some wounds don’t bleed. They don’t show up on skin or in scans. They live beneath the surface, in silence and shame. For many survivors of trauma, one of the hardest, most unspoken struggles is the fractured relationship with their own body. This is mine. Because of trauma, I often hate my body. And that’s not a metaphor. It’s a fact I’ve had to face, over and over again. The Body Becomes a Battlefield Trauma…
10 Unspoken Reasons Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse
Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse There comes a time in every journey when continuing forward no longer feels brave — it feels like survival without self. For years, I poured my energy, heart, and lived experience into advocacy. I fought to be seen, to make space for others, to speak truths that were too often buried under the weight of silence. I showed up in rooms that weren’t…
7 Powerful 2021 Sundance Films That Nailed Authentic Disability Representation
The 2021 Sundance Film Festival offered a refreshing and long-overdue spotlight on stories that reflect the real world — including authentic disability representation. In a media landscape that often excludes or misrepresents disabled individuals, Sundance provided a platform for filmmakers who brought truth, dignity, and complexity to disability narratives. These films did more than just feature disabled characters — they told their stories with nuance, respect, and realism. From bold documentaries to groundbreaking dramas, these…
Dismissed by Words: What It Feels Like When I’m in Pain and Someone Says, ‘That Didn’t Hurt’
Pain is personal. It’s intimate. It’s rooted in the unique wiring of a body and the lived experience of the person inside it. So when I’m in pain and someone says, “That didn’t hurt,” the words don’t just miss the mark—they sting in a way that’s deeper than the initial physical pain itself. They erase my experience, question my reality, and shrink my voice into silence. For anyone living with an invisible illness like fibromyalgia,…
Words That Wound: What You Should Never Say When Someone Tells You They’re in Pain
When someone opens up about their pain—whether physical, emotional, or invisible—they’re not just stating a fact. They’re taking a vulnerable step. They’re trusting you with something raw and real. But what happens next—the way you respond—can either build a bridge of support or deepen the hurt. Words carry power, and the wrong ones can wound deeper than silence ever could. What you should never say when someone tells you they’re in pain isn’t always obvious.…
Why Rita Farr in Doom Patrol Shatters Stereotypes and Empowers the Chronic Illness Community
In a media landscape saturated with superheroes who seem invincible, Rita Farr stands apart. Known as Elasti-Woman on HBO Max’s Doom Patrol, Rita is not your typical comic book character. While she possesses powers, her story is deeply entwined with themes of vulnerability, identity crisis, and the lasting physical and emotional toll of trauma. For many living with chronic illness, Rita Farr’s journey offers a powerful reflection of their own struggles and resilience. Her character…
16 Powerful Reasons People With Chronic Illness Make Remarkable Life Partners
Living with chronic illness demands resilience, adaptability, and emotional depth. While the challenges are undeniable, the experience also shapes individuals in profound ways that can translate into exceptional qualities as romantic partners. People often overlook this perspective, focusing only on what might seem difficult. But the truth is, those who live with chronic illness bring a unique blend of empathy, strength, and authenticity to relationships. Here are sixteen reasons why they make incredible life partners.…
How I Found My True Identity at the Intersection of Queerness, Neurodiversity, and Disability
For much of my life, I felt like I was navigating a maze blindfolded. I didn’t have the words to describe who I was or why the world around me felt so overwhelming. I only knew that I was different, and that difference carried weight. It wasn’t until I began to unpack the layers of queerness, neurodiversity, and disability within myself that I started to piece together a fuller picture. In that space where all…