Waiting is something most people dislike. Waiting in traffic, Waiting in line, Waiting for life to pick up speed. But for those living with chronic illness—especially fibromyalgia—waiting becomes a central part of existence. It’s not…
Chronic Awareness
Raise awareness about chronic illnesses by understanding their impact, symptoms, and the importance of support and education.
Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia
To my friends and family who don’t have fibromyalgia, I know it’s hard to understand what I go through. I know there are days when I seem distant, fragile, or completely different from the person…
Voices That Heal: The Power of Sharing Our Fibromyalgia Stories
Living with fibromyalgia can feel like carrying a weight that no one else sees. The pain is real, but invisible. The fatigue is constant, but misunderstood. The emotional toll builds quietly, often behind a forced…
11 Hard Realities: When My Long-Term Disability Was Revoked Because I ‘Don’t Look Sick’
When My Long-Term Disability Was Revoked Because I ‘Don’t Look Sick’ I never imagined that having an invisible illness would mean I’d have to fight to prove my suffering to strangers. I never thought I’d…
10 Unspoken Reasons Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse
Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse There comes a time in every journey when continuing forward no longer feels brave — it feels like survival without self. For years,…
7 Powerful 2021 Sundance Films That Nailed Authentic Disability Representation
The 2021 Sundance Film Festival offered a refreshing and long-overdue spotlight on stories that reflect the real world — including authentic disability representation. In a media landscape that often excludes or misrepresents disabled individuals, Sundance…
Dismissed by Words: What It Feels Like When I’m in Pain and Someone Says, ‘That Didn’t Hurt’
Pain is personal. It’s intimate. It’s rooted in the unique wiring of a body and the lived experience of the person inside it. So when I’m in pain and someone says, “That didn’t hurt,” the…
Words That Wound: What You Should Never Say When Someone Tells You They’re in Pain
When someone opens up about their pain—whether physical, emotional, or invisible—they’re not just stating a fact. They’re taking a vulnerable step. They’re trusting you with something raw and real. But what happens next—the way you…
Why Rita Farr in Doom Patrol Shatters Stereotypes and Empowers the Chronic Illness Community
In a media landscape saturated with superheroes who seem invincible, Rita Farr stands apart. Known as Elasti-Woman on HBO Max’s Doom Patrol, Rita is not your typical comic book character. While she possesses powers, her…
The Truth of My Love Life With Fibromyalgia Reveals What No One Talks About
Living with fibromyalgia means living with layers of pain, fatigue, confusion, and unpredictability. But what people rarely talk about is how deeply it can affect something as personal and sacred as a love life. When…