By: Dr Alex Robber
Self-dubbing is one thing which continually surprises me about fibromyalgia. We have all heard of fibromyalgia-patients who deal with health workers who don’t think their pain is true or who are unbelievable about their diagnoses from friends and family. But I never expected to fight doubts in my own mind continuously.
Maybe this is related to the tenuity of the diagnosis, I believe. There is no blood test or x-ray to which we can refer as evidence of our disease. We are instead asked subjective questions which are difficult to answer.
“How weary are you on a scale of one to ten? “What does suffer mean? A dull ache or sharp pain is it softness? To consider pain, how much does it have to hurt? Now, do you imply what pain was five years ago, according to my definition of pain?
“Do they hurt when I print these places? “It’s awful but not awful. I’d have said it hurt if you questioned me three years ago, but it just feels tender now. So, is this soft or painful? Is that a five or an eight on a scale from one to ten?
Following a diagnosis of fibromyalgia, I remember leaving my office as a rheumatologist. I was faced with doubt in the following days and weeks. Have I properly answered the questions? Would I still have the same diagnosis if I had replied differently? What if I had unintendedly exaggerated?
I know, underlying my self-doubt was a nod of hope that my issue could be resolved by a couple of visits to a physical therapist.
However, self-dubbing makes a diagnosis very difficult to recognize and makes it simple to push too hard and end in a push / crash cycle.
I had to acknowledge my diagnosis over a year and still have doubts. Am I sick really, or am I lazy? Can’t really eat tonight or can’t I just feel like it? The man with fibromyalgia does more than I am, so perhaps I can only do a lot more and I’m overdramatic. Maybe if I only practice more, take or alter my diet with that specific supplement.
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The doubts of oneself make your experience even more devastating because you feel particularly lost, because you cannot trust even your instincts.
I didn’t really know the amount of pain I suffered until I had a very strange migraine. It was one of those migraines and finished with an aura, which was unusual. I didn’t have any pain whilst I had the aura. It lasted a few happy hours and it was so revealed to me that a normal person feels like this. The sandbags dropped away for a little while, and pain, tenderness and rigidity grew up. for a while. I felt thankful, mostly because it made me understand my situation’s complete reality.
Fibromyalgia I’ve got. I’ve got chronic pain and tiredness. I find the route of recognition that we have to travel and find out all by ourselves–naming our disease, acknowledging our constraints, identifying our requirements and then discovering the equilibrium between the level of good exercise (for us) and the remainder that we need. It is not a simple trip and nobody can provide us with a map. Fortunately, we can help each other on our journeys through forums like this.
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