The world lost a woman yesterday.A boy lost his grandmother, three people lost their mother and a man lost his wife.This woman was a pistol, tough and strong and a force to be reckoned with.I grew up with her tales of adventure, living overseas while young and newly married, her husband in the military.I learned of a day in 1929 when this girl took a shoebox of money she was saving to the bank, to…
Fibromyalgia
An in-depth guide on Fibromyalgia, covering its symptoms, causes, treatments, and tips for managing this chronic condition effectively.
Unspeakable Pain but Were you Hurt Most?
There is a book whose title I will not tell, written by an author that will remain unnamed, that everyone in the whole wide world made such a gigantic fuss about. Hollywood even made it into a movie! And all I heard from everyone I knew was to read this book. It is great! Empowered womanhood! You will love it! They all assured me. So I broke down and bought the darn thing in paperback…
The Fibromyalgia Spectrum
Recently I posed a question in Fibromyalgia Support Group, our support site on Facebook. I am looking for more information about this Fibro-monster, but not what I can pull up in a quick Google search or another strange set of statistics gathered from who knows where. I want real honest to goodness patient-based information from the patients I interact with every day. The real people that have this illness. For there has got to be…
The Stigma of Fibromyalgia
A thought just suddenly popped in my head, seemingly from nowhere, and I am finally able to put my finger on exactly what the stigma of Fibromyalgia brings to the table. See it’s not that we don’t want to get better or are lazy or are working the disability system or are crazy, drug-seeking or just feeling the normal aches and pains of age. That is what the ignorant must believe for some odd reason…
Fibromyalgia in the Real World
I had an extremely eye-opening and revealing thing happen to me this weekend. Whilst I was dealing with some minor family upset, I Fibro–crashed. All my energy had been spent and exhaustion socked me square in the jaw. I became stiff and inflamed all over my body. I hurt and no position made me comfortable, sitting, standing, lying down, it all just ached. I became foggy and hazy in my brain and the slightest bit…
All these positive Fibromyalgia experiences
As I have been opening my mouth more and more about Fibromyalgia, The Crusade, awareness, and the general passion of my life to anyone and everyone that will listen I keep having positive experiences! Where I used to get glazed over expressions of distracted disinterest I am now finding myself bombarded with questions of genuine curiosity. I don’t know if the difference is me or Fibro. No longer mopey and sad-faced as I mumble that…
The Color Purple is for Fibromyalgia
As most of us are well acquainted, the color of our support ribbon is purple. Purple is a traditional color of royalty, the color of the Crown Chakra which is linked to the crown of the head, the nervous system, and the brain (okay can someone please say Fibromyalgia!), and is representative of pure thought. The Purple Heart represents courage in the military and pride in Christianity, just to name a few of its associations.…
I am so sorry I have Fibromyalgia
I frequently find myself either bitterly acting out or saying this to those around me. Apologizing to those whose lives are affected by my illness, as though it is something I did or like or want or don’t suffer horribly from myself. As hard as Fibromyalgia is to manage, the guilt on top of everything else is ridiculous! Do other chronic illness sufferers feel the same way or is this particular to our condition because…
I am sick of fibromyalgia apologizing
I am sick of apologizing for being me. I am sick of apologizing for being sick and not as productive or efficient or clear-headed as I once was. I am sick of apologizing for the passion that consumes me to get Fibromyalgia out of my brain and actually doing something to better our lives. I am sick of apologizing for not going to bed early enough or keeping my house clean enough or taking the…
The Fibromyalgia Crusade
I am launching THE FIBROMYALGIA CRUSADE! I am a Fibromyalgia patient, not a doctor, scientist, researcher, or Ph.D. I am a real woman living a real-life with a real disease that receives little to no respect or understanding from the world at large. I became ill in 2005 and have devoted the last 5 years of my life to overcome the debilitating and miserable reality that is living with Fibromyalgia. My medical history is complex.…