Celebrate the resilience of Fibromyalgia warriors, sharing stories of strength, tips for managing symptoms, and resources for support and empowerment.
Fibromyalgia is primarily a neurological brain disorder. It is seven times more likely to strike women than men, and it doesn’t matter what nationality you are. The hypothalamus part of the brain acts as a circuit breaker/fuse box for the rest of the brain and body. It’s like the battery for the entire body. There are several things that typically cause Fibromyalgia and Chronic Fatigue Syndrome to manifest, but basically high amounts of stress are what…
As everyone else said, it does suck, but how it feels to live with chronic illness varies as much as people vary. People react to their new limitations, lifestyle, and the overall new “suckiness” of their life differently, based on personality, previous experiences, support network, mental health, and a million other variables. I, for example, handle it really well. I’m 100% disabled. My autonomic nervous system doesn’t work properly which causes heart rate and blood…
I’ve had it for about 29 years now. In a word—-Pain. Never-ending, constant pain. Your shoulder will suddenly start to hurt, which can last for a few seconds to days. That can happen in any part of your body. When it quits, it will start in some other place, again for only a few seconds to days. One day I woke up, got up to go to the bathroom, and fell on my knees with…
I’ve had fibromyalgia since the 1980s. It came on gradually, with a lot of muscle pain. I knew something was wrong and had a course of physical therapy, and started working out, which put me at about 95% of normal. Then I was in a car accident, which caused a fibromyalgia flare. I had a nerve pinch from my neck down my arm, which was a 7 + on the pain scale and lasted a…
Fibromyalgia is a nightmare. I have had it for approximately 25 years. My GP, at a time when it was at its worst, gave me Tramadol. It was a miracle drug for me, but it is very difficult to come off of, so I stopped taking it. I finally went to a doctor for emotional issues and he recommended Cymbalta. It worked immediately to lessen my pain. I also take Wellbutrin. Between the two I…
It’s like having your nervous system turned up to 11. All the time. With no end in sight and only minor times where it is lessened. You feel everything that is touching you (even your clothes and light breezes) all the time, which can range anywhere from fairly irritating to “why am I being rubbed with coarse sandpaper?” Every joint and muscle feel like you’re just completed a marathon when you’ve just been sitting still. Click here…
Imagine being beaten and having huge bruises over your entire body, with a full-body sunburn on top of that, and having someone taking a stick and repeatedly poking all your tender spots while you are trying to run a long marathon. For someone with Fibromyalgia, everyday tasks are just as exhausting as running a marathon. Even simple things, like taking a shower, requires 5 times the amount of energy for someone with Fibro and CFS,…
Post Exertional Malaise is my most annoying symptom. I had to stop exercising during a flare 4 months ago, and trying to get myself where I can go for a swim again is highly frustrating, because even a 50m swim will use up all my energy for the day, so I need my husband to do everything else for me. Almost impossible to coordinate. Everything else I can mostly sort out on my own. Here…
Story of Fibromyalgia Support Group Warrior ABSOLUTELY!!! December 2009 thru January 2010…..I was employed at a Major grocery retail store’s food warehouse (not naming names, but a little hint would be they are based in Germany…I would LOVE to just name the company and give as many bad reviews to them as I could. I HATE this place …they have NO regard for their employee’s health safety or anything else for that matter…all this place…
She can barely get out of bed some days. One day it’s her foot, another it’s her hip. She’s sad and tired and feels like my and my sister I’s lives aren’t what they could be because of her. How do I help her? Patience and compassion are the keys. Your mother isn’t making things up. She’s not lying; she’s not exaggerating. One of the hardest things for “norms” (people without invisible illness) to understand…