Celebrate the resilience of Fibromyalgia warriors, sharing stories of strength, tips for managing symptoms, and resources for support and empowerment.
I ask this question in our fibromyalgia support group, Many people are responding to this issue. Here we have collective knowledge on this question. SAM-e. I started with 200 mg once a day. I increased it every other day until I got relief which for me was until I reached the maximum dose of 1600 mg every 24° period (i take 400 mg every 6°). Do not take if you are on an antidepressant without…
Unfortunately not only is Fibromyalgia comorbid with other conditions, but its symptoms can also mask other issues. There’s no definitive test as it doesn’t show up in blood work so it’s diagnosed by clinical evaluation. When I was diagnosed with Fibromyalgia, I had been experiencing widespread pain (one of the symptoms/criteria) for years, but due to being a teenager, was told it was “growing pains”. It wasn’t. Other criteria they use are trigger points that,…
I have Fibromyalgia. My father drank heavily in the 1960s and both my parents smoked tobacco when I was conceived. As a child, I frequently had strep throat, bronchitis, and even pneumonia. Even at 2 two years old I remember being inside the incubator seeing the outline of my Mom and my uncle who came in to visit. My teeth are stained from taking the antibiotic, Tetracycline as a young child. As I understand it…
You know this is the craziest thing I am going to talk about now… I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia. After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was…
Get your genes mapped. If you have either fibromyalgia or chronic fatigue it is probably most likely due to “Soft Tissue Calcification” which is caused by the body not excreting enough sulfur and phosphorus, which is caused by having genetic mutations like CBS 699 and SUOX mutations. The treatment for these mutations right now is to eat a diet that is very low in sulfur and phosphorus and calcium and vitamin D because these will…
Medical professionals roll their eyes at the thought of them. I am interested in opinions from both sides. I think a big part of it is that the medical profession doesn’t want to admit how much they still don’t know, both in terms of treating illness or even identifying it in the first place. There is a perception that we are so advanced with science, we have all these amazing tests and treatments now. So…
I saw an answer from a physician, but mine comes from personal experience from fibro (8 years and counting). It’s not a simple answer, unfortunately. Fibromyalgia, for me, is a reactive condition. What that means for me is that I have a constant level of pain that is my day-to-day pain level. It’s usually somewhere about a 4 or a 5. If it’s a little lower, that’s a fantastic day, but I can survive with…
Diagnosed 10 years ago. Every day is a new mystery I am ridiculously picky about my clothes, since mild to moderate Allodynia is one of my Fibromyalgia symptoms. No sleeves of any fabric, soft fleece if I need a jacket. No bra. Between allodynia and costochondritis? Let them tiddies sag. I like breathing with less pain and not getting rashes. Screw the rules. No wool, cashmere, or other animal fibers. When they are cut, they…
Not all Rheumatologists (especially if they had been trained some years earlier and belong to the older generation) believe in Fibromyalgia. Even if they “believe”, not all are comfortable with managing patients with Fibromyalgia for diverse reasons. One very common reason (which doctors only admit to other doctors) is that Fibromyalgia patients are generally difficult (I sympathize with those patients) as they are generally mistrustful of doctors in general after all their bad experiences with…
I was diagnosed with Fibromyalgia in 2015 and have been finding ways to keep going! Well, let’s look at this logically. When a person goes missing alien abduction is not on the police’s mind. At no point in their investigation does a detective state “should we not consider alien abduction.” When they have completely exhausted all areas of questioning they have to move on and they leave the case as an open “cold case.” Click…