Celebrate the resilience of Fibromyalgia warriors, sharing stories of strength, tips for managing symptoms, and resources for support and empowerment.
I had an extremely eye-opening and revealing thing happen to me this weekend. Whilst I was dealing with some minor family upset, I Fibro–crashed. All my energy had been spent and exhaustion socked me square in the jaw. I became stiff and inflamed all over my body. I hurt and no position made me comfortable, sitting, standing, lying down, it all just ached. I became foggy and hazy in my brain and the slightest bit…
As I have been opening my mouth more and more about Fibromyalgia, The Crusade, awareness, and the general passion of my life to anyone and everyone that will listen I keep having positive experiences! Where I used to get glazed over expressions of distracted disinterest I am now finding myself bombarded with questions of genuine curiosity. I don’t know if the difference is me or Fibro. No longer mopey and sad-faced as I mumble that…
As most of us are well acquainted, the color of our support ribbon is purple. Purple is a traditional color of royalty, the color of the Crown Chakra which is linked to the crown of the head, the nervous system, and the brain (okay can someone please say Fibromyalgia!), and is representative of pure thought. The Purple Heart represents courage in the military and pride in Christianity, just to name a few of its associations.…
I frequently find myself either bitterly acting out or saying this to those around me. Apologizing to those whose lives are affected by my illness, as though it is something I did or like or want or don’t suffer horribly from myself. As hard as Fibromyalgia is to manage, the guilt on top of everything else is ridiculous! Do other chronic illness sufferers feel the same way or is this particular to our condition because…
I am launching THE FIBROMYALGIA CRUSADE! I am a Fibromyalgia patient, not a doctor, scientist, researcher, or Ph.D. I am a real woman living a real-life with a real disease that receives little to no respect or understanding from the world at large. I became ill in 2005 and have devoted the last 5 years of my life to overcome the debilitating and miserable reality that is living with Fibromyalgia. My medical history is complex.…
I attended the birthday party of a good friend last night. Just an intimate and impromptu get-together at her house, I found myself given the opportunity for the first time since I have taken up the proverbial Fibromyalgia cross to promote my condition and raise awareness, the new charge of my life. But I was at a loss as to how to explain it without launching into 20 minutes of background information to answer each…
Fibromyalgia has come a long way since I was diagnosed in 2006. The FDA approved Lyrica a year later and overnight it went from “being in your head” to a real condition…for some medical professionals. Not all jumped on the bandwagon because there is still no definitive test to confirm the diagnosis, but it was mildly legitimized. At least there was a sector that believed us, that we were hurting, throbbing, on fire inside, crushing…
I logged onto Facebook this morning, feeling estranged and isolated from my Fibro family. This weekend absorbed all of me in physical pain and emotional anguish debauchery of lowered Prednisone dosing and all the joys that accompany coming off that drug. Just taking the dogs on a walk this morning picked me up and plopped me right back in the middle of Northern California, about 2007. Pick any month, the weather sucks all the time,…
Either that or this terrible impatience and frustration and I kinda have to admit, pure anger pouring out of me is the premonition of a flare. But I have to say all I do is look around at the wreckage that is my life and get really pissed off. The dust bunnies are having babies, getting my carpet cleaned has only made it dirtier, not that I ever vacuum. The laundry needs to be done,…
At the end of July, I had 2 strokes. Old news to most, new news to a few. I was diagnosed with a treatable and reversible form of Vasculitis, put on Prednisone, and sent home to recover. Now I will utilize modern medicine for many things but prefer to go as natural as possible as much as I can. Pancreatitis, give me the drugs. Vasculitis, bring ’em on! VICD, you bet ‘cha I will crush…