How have you handled your Battle with Fibromyalgia?
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How have you handled your Battle with Fibromyalgia?

Having an understanding family has been wonderful. My husband and son understand when I having a bad day and pitch in without hesitation. Find those people who understand and support you. But it is also important to remain positive and do the things you can and not allow your chronic illness to define you. Georgia Shaffer, a psychologist, professional speaker, and life coach was given a 2% chance of survival after a recurrence of breast…

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What is the best way to battle daily with Fibromyalgia Nerve and Muscle Pain?
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What is the best way to battle daily with Fibromyalgia Nerve and Muscle Pain?

The best way is to accept it and moderate it in a moment-by-moment exercise. The stress of the “fight” will only make the pain worse for most with fibro. My new normal is that I am in pain every second of every day. I avoid unnecessary stressors which include movies and tv shows that are too intense. If a sporting event causes “tension and release” that is excessive for me, I stop watching. If a…

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What’s one thing that helped your Fibromyalgia Pain?
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What’s one thing that helped your Fibromyalgia Pain?

For me, it was addressing the root cause of the illness: heavy metal toxicity. I had 8 dental amalgams as well as a couple of root canals. I used to get vaxxed. I ate a lot of fish. I had some imaging with contrast dyes. Nowadays everyone is exposed to multiple heavy metals. So once I had the amalgams safely removed that was a huge step forward I have been working on getting my body’s…

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Is Fibromyalgia just a throw-away Diagnosis when they can’t figure out what’s wrong?
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Is Fibromyalgia just a throw-away Diagnosis when they can’t figure out what’s wrong?

I don’t know what it takes to make a fibromyalgia diagnosis because I don’t trust science’s model to describe and assess what the phenomenon really is. They do more harm when they label human beings with all kinds of “disorders”. Those assumed disorders become something that human beings wrongly identify with, later on in their lives, which render them unable to truly ever transcend their condition. Simply because they have grown to identify with it.…

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My Doctor Diagnosed me with Fibromyalgia but refuses to put me on any medication for it.
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My Doctor Diagnosed me with Fibromyalgia but refuses to put me on any medication for it.

I ask this question in our fibromyalgia support group, Many people are responding to this issue. Here we have collective knowledge on this question. SAM-e. I started with 200 mg once a day. I increased it every other day until I got relief which for me was until I reached the maximum dose of 1600 mg every 24° period (i take 400 mg every 6°). Do not take if you are on an antidepressant without…

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Do doctors often misdiagnose patients with Fibromyalgia instead of conducting further testing?
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Do doctors often misdiagnose patients with Fibromyalgia instead of conducting further testing?

Unfortunately not only is Fibromyalgia comorbid with other conditions, but its symptoms can also mask other issues. There’s no definitive test as it doesn’t show up in blood work so it’s diagnosed by clinical evaluation. When I was diagnosed with Fibromyalgia, I had been experiencing widespread pain (one of the symptoms/criteria) for years, but due to being a teenager, was told it was “growing pains”. It wasn’t. Other criteria they use are trigger points that,…

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If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?
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If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?

I have Fibromyalgia. My father drank heavily in the 1960s and both my parents smoked tobacco when I was conceived. As a child, I frequently had strep throat, bronchitis, and even pneumonia. Even at 2 two years old I remember being inside the incubator seeing the outline of my Mom and my uncle who came in to visit. My teeth are stained from taking the antibiotic, Tetracycline as a young child. As I understand it…

If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro? Read More
What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?
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What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?

You know this is the craziest thing I am going to talk about now… I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia. After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was…

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How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?
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How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?

Get your genes mapped. If you have either fibromyalgia or chronic fatigue it is probably most likely due to “Soft Tissue Calcification” which is caused by the body not excreting enough sulfur and phosphorus, which is caused by having genetic mutations like CBS 699 and SUOX mutations. The treatment for these mutations right now is to eat a diet that is very low in sulfur and phosphorus and calcium and vitamin D because these will…

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Why is there such a strong Stigma with Fibromyalgia patients?
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Why is there such a strong Stigma with Fibromyalgia patients?

Medical professionals roll their eyes at the thought of them. I am interested in opinions from both sides. I think a big part of it is that the medical profession doesn’t want to admit how much they still don’t know, both in terms of treating illness or even identifying it in the first place. There is a perception that we are so advanced with science, we have all these amazing tests and treatments now. So…

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