My Body Negotiations: Someone With Chronic Disease Negotiations Living with a chronic disease is often described in medical terms, but that language only captures part of the experience. The reality is not just biological; it…
chronic illness
Raise awareness about chronic illnesses by understanding their impact, symptoms, and the importance of support and education.
Somewhere Between Denial and Depression in Fibromyalgia
Living in the Middle Ground of an Unstable Reality Fibromyalgia often forces people into an uncomfortable psychological space that is neither fully acceptance nor fully despair. It sits somewhere in between—where symptoms are real enough…
The “Legalization of Cannabis in the UK” for Chronic Illness
The conversation around cannabis in the UK has shifted significantly over the past decade, especially when it comes to chronic illness. What was once a largely taboo topic has become a complex mix of medical…
My Float Tank Experience in Fibromyalgia: Finding Stillness in a Body That Rarely Feels Still
Living with fibromyalgia often means living with a body that feels loud even when everything around it is quiet. There is the background ache that never fully switches off, the sensitivity that turns ordinary sensations…
Hope that millions of people with fibromyalgia can diagnose condition more quickly as a new gut bacterial test
Fibromyalgia has long been one of the most difficult chronic conditions to diagnose with confidence. Many people spend years moving through different clinics, undergoing repeated tests, and receiving conflicting explanations before finally getting a label…
If Doctors Are Struggling to Help You: Fibromyalgia Awareness and the Experience of Feeling Dismissed
Fibromyalgia is one of the most misunderstood chronic health conditions in modern medicine. It does not show up clearly on standard imaging, it does not always produce obvious laboratory abnormalities, and its symptoms overlap with…
Blue Badges and Access for People with Hidden Disabilities
The idea of accessible parking is often associated with visible mobility impairments—wheelchairs, walking aids, or clearly observable physical limitations. However, disability is far more complex than what can be seen at a glance. Many individuals…
It’s hard to pretend to be OK – Chronic Illness Awareness
By: Dr. Alexa James When people ask me what I am or what I am doing, generally my typical answer is the same, “I am OK,” or “I am good,” or “I am OK,” or,…
FDA Warning on Gabapentin and Pregabalin: Understanding the Risk of Serious Breathing Problems
Introduction Gabapentin and pregabalin are widely prescribed medications used to treat a range of conditions, including nerve pain, epilepsy, generalized anxiety symptoms (in some regions and off-label use), and fibromyalgia-related discomfort. Over the years, they…
Fibro Warrior Creates a Training Program for “Us Only”
The idea of a “Fibro Warrior training program” speaks to something deeper than exercise routines or structured plans. It reflects a desire for guidance, stability, and empowerment in the middle of a condition that often…