Fibromyalgia Community

Raw and Real: The Vulnerability of Dating While Living With Fibromyalgia

Dating can be a rollercoaster of emotions for anyone, filled with hope, excitement, uncertainty, and self-reflection. But when you live with fibromyalgia, that rollercoaster becomes more complex, layered with fears about being misunderstood, judged, or even rejected. The vulnerability of dating while being a fibromyalgia sufferer runs deep, touching every part of the emotional and physical experience of connection. Navigating the First Conversations The early stages of dating are full of questions. What do you…

by Dr Alex Robber•05/15/202508/22/2025•0

Limitless Within Limits: Living the Biggest Life I Can With Fibromyalgia

When I was first diagnosed with fibromyalgia, the future felt small. Everything I had planned suddenly seemed out of reach. Travel, work, hobbies, spontaneity—all of it felt threatened by a body that no longer responded the way it used to. But over time, I learned that life with fibromyalgia doesn’t have to be limited. It just has to be lived differently. This is my story of living the biggest life I can with fibromyalgia and…

by Dr Alex Robber•05/15/202508/22/2025•0

Bruised But Breathing: Because of Trauma, I Often Hate My Body – And That’s My Truth

Some wounds don’t bleed. They don’t show up on skin or in scans. They live beneath the surface, in silence and shame. For many survivors of trauma, one of the hardest, most unspoken struggles is the fractured relationship with their own body. This is mine. Because of trauma, I often hate my body. And that’s not a metaphor. It’s a fact I’ve had to face, over and over again. The Body Becomes a Battlefield Trauma…

by Dr Alex Robber•05/15/202508/22/2025•0

The Stillness Between Storms: What Living With Fibromyalgia Taught Me About Waiting

Waiting is something most people dislike. Waiting in traffic, Waiting in line, Waiting for life to pick up speed. But for those living with chronic illness—especially fibromyalgia—waiting becomes a central part of existence. It’s not a pause before the action. It is the action. What living with fibromyalgia taught me about waiting has shaped the way I see time, purpose, and even myself. The Wait for a Diagnosis Before I could even begin to live…

by Dr Alex Robber•05/15/202508/22/2025•0

Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia

To my friends and family who don’t have fibromyalgia, I know it’s hard to understand what I go through. I know there are days when I seem distant, fragile, or completely different from the person you used to know. And while I’ve tried to explain, I realize that chronic illness can be difficult to truly grasp unless you’re living it. So I’m writing this not to make you feel sorry for me, but to invite…

by Dr Alex Robber•05/15/202508/22/2025•0

Voices That Heal: The Power of Sharing Our Fibromyalgia Stories

Living with fibromyalgia can feel like carrying a weight that no one else sees. The pain is real, but invisible. The fatigue is constant, but misunderstood. The emotional toll builds quietly, often behind a forced smile or polite silence. But in the midst of this invisible battle, something powerful happens when we speak. The power of sharing our fibromyalgia stories goes far beyond catharsis—it becomes a lifeline, a connection, and a revolution of empathy. Breaking…

by Dr Alex Robber•05/15/202508/22/2025•0

Unmasking the Hidden Pain: 7 Alarming Truths About the Taboo Side of Fibromyalgia

Unmasking the Hidden Pain: 7 Alarming Truths About the Taboo Side of Fibromyalgia Fibromyalgia is often discussed in whispers. While many recognize its name, few truly understand the full extent of what this condition entails. The taboo side of fibromyalgia goes far beyond physical pain. It touches on mental health, societal stigma, invisible symptoms, and an overwhelming sense of isolation. This article aims to shine a light on the lesser-known, often-ignored aspects of fibromyalgia that…

by chronicillness•05/15/202508/22/2025•0

When Hope Turns Heavy: 6 Harsh Realities of Living With Fibromyalgia Disappointments

Hope is a powerful force. It fuels the search for answers, keeps spirits high during flare-ups, and motivates patients to try yet another treatment. But for those battling fibromyalgia, hope can sometimes backfire. The phrase when hope disappoints you with fibromyalgia is more than just words. It encapsulates the emotional turbulence of expectations unmet, diagnoses delayed, and healing that never comes. This side of fibromyalgia, though rarely discussed, deserves honest attention. Living with fibromyalgia is…

by chronicillness•05/15/202508/22/2025•0

Diagnosed Too Soon: The Truth About Getting a Fibromyalgia Diagnosis Young and Why It’s Not ‘Easier’

When I was asked if getting my fibromyalgia diagnosis young was easier, I paused. There was no clear way to respond to that question without unpacking the weight of what it really means to be a young person living with a lifelong chronic illness. On the surface, the idea might make sense. Maybe people assume early diagnosis gives you more time to adjust or access treatment sooner. But the truth is, being diagnosed with fibromyalgia…

by chronicillness•05/15/202508/22/2025•0

Saying Goodbye to Who I Was: Mourning Your ‘Before’ Self With Fibromyalgia

There’s a grief that doesn’t come with a funeral. A silent mourning that lingers, quietly reshaping your life. This is the kind of loss that comes when fibromyalgia leaves you mourning your ‘before’ self—the version of you that existed before chronic pain took hold. It’s not a single moment, but a gradual realization that the person you once were may never return. And that realization is deeply painful. Living with fibromyalgia forces you to confront…

by chronicillness•05/15/202508/22/2025•0