I have so many auto-immune diseases going on, I’ll begin with fibromyalgia. When I lived in Vermont, one morning I could hardly get out of bed…all my muscles and joints hurt very much. I thought I’d have to call an ambulance. I lie there a while in bed. Eventually the severe pain eased us. I had what is known as a “flare”. I went to my Dr. She said her office would make an appointment…
Seriously, no two days are the same. I think that is the reality that most people can’t wrap their minds around. I have absolutely no idea what my pain will be like a month from now. The only thing I know for certain is that I will have pain. Every day. For the rest of my life. I’d say it’s like being trapped on a roller coaster and you can only see two feet in…
I’m not telling you what not to do, but a way to get to the point where you can do things. Avoiding things with fibromyalgia is a slippery slope. It reinforces how disabled you are. You need to be active, but very slowly increasing what you’re doing Go to a physiotherapist and tell them you want to start SLOWLY you are able to move your knee fives. Do it. Tomorrow do six times, and soon.…
Fibromyalgia has a bad reputation because many members of the medical community doubted that it was a real disorder until the last several years. Even with the change in perception of the disorder, there are still a number of medical personnel who do not believe in it. Fibro is one of those things that cannot be proven by standard medical testing. As a result of this, many who are relatively naive about it still think…
I’ve tried just about every medication possible over the years, and have just recently ended up with a configuration that works for me. Some of these are atypical, and were prescribed for something else but ended up helping. I am putting my results with each here, because although everyone reacts differently – especially fibro patients – I have found it helpful seeing other people’s experiences in order to help figure out where side effects were…
Chronic pain in the upper and lower aspects of the same body side suggest a musculoskeletal disorder. In cases of fibromyalgia, a constellation of symptoms can exist which reflect simultaneous painful dysfunction of the pelvic and shoulder girdles. My clinical researchers have discovered that females can incur looseness and hypermobility (subluxation) of their pelvic girdle sacroiliac joints (note for physicians: diagnostic criteria are found in the Occupational Disabilities Guidelines). Pelvic instability can become a chronic…
I had fibromyalgia symptoms for 15 years before I was diagnosed. At that time, I took a course of physical therapy where I did the Wharton stretch method, where you put a strap around your ankle, stretch your leg, and then gently use the strap to extend the stretch for a second. This, combined with a slow, progressive walking program where I extended the length of my walk over time improved my energy and pain…
Fibromyalgia Vs Women The reasons that more women develop Fibromyalgia include, but are not limited to, the following physiologies and pathologies: The women’s pelvic girdle is more delicate than that of the men, wherein bigger bones and more massive ligaments provide a stronger platform for the upright post of the spine and a stronger tower for lifting, pushing, and pulling. Women are at greater risk for injury of the soft tissues, ligaments, tendons, muscles, and…
First of all, you haven’t changed. You’re the same person with the same condition, except now you have a label. I found that label very liberating because it showed me that I had a real disability and that I wasn’t “just making it up” or “being lazy” or such. Plus, now you can say “I have fibromyalgia” instead of “well I’m kinda really tired and, like, achy all over”, which sounds more convincing. Other stuff,…
A wonderful database of patients who have accomplished a remission from Fibromyalgia and Chronic Fatigue Syndrome has been created by Chronic-illness Community has video-interviewed several survivors and he has made these available for review. The stories he presents and the stories I have heard from patients contain similar reports of survivorship, and it is exactly the healing journeys of these survivors that point to the causes and the diagnosis of Fibromyalgia and Chronic Fatigue Syndrome.…