“Names are not always what they seem”, Mark Twain How to go about convincing experts and the general population that fibromyalgia is not a disease, but a Medically Unexplained Syndrome (MUS)? It is in fact,…
Fibromyalgia: Living on high alert
“We don’t see things as they are, we see them as we are”, Anaïs Nin One of the common sayings in Mindfulness Meditation is that thoughts are not facts. In chronic pain clinics, we are…
Trigger warnings for the fibromyalgia mind
“Courage is resistance to fear, mastery of fear-not absence of fear” , Mark Twain Neuroscientists can now tell us amazing things about the brain, they are the experts on the nervous system. The argument that…
Fibromyalgia: “what’s that smell”?
“For the sense of smell, almost more than any other, has the power to recall memories and it is a pity that we use it so little”, Rachel Carson Many of us with fibromyalgia are…
Writing about Fibromyalgia: The psychological and physiological effects
“There is no greater agony than bearing an untold story inside you”, Maya Angelou A very interesting interview a while ago on CBC Radio with Michael Enright as host. Dr. Suzanne Koven, who is a Massachusetts General Hospital…
Fibromyalgia: Living with Chronic Pain
“In three words I can sum up everything I’ve learned about life: it goes on”, Robert Frost My friend has become my guru for updates on research regarding pain. I take hope because of her…
Fibromyalgia and Brain Fog: Stop, Breathe & Think
“My own brain is to me the most unaccountable of machinery-always buzzing, humming, soaring roaring diving, and then buried in mud”, Virginia Woolf To live a life in a state of high anxiety, boarding on…
Fibromyalgia and unnecessary tests: more care is not better care
“He’s (sic) the best physician that knows the worthlessness of most medicines”, Benjamin Franklin This is not a blog about doctor bashing. I have been so fortunate for many decades to have a physician who does…
Fibromyalgia and Nurses
“Women never have a half-hour in all their lives (excepting before or after anybody is up in the house) that they can call their own, without fear of offending or of hurting someone”, Florence Nightingale…
I have Fibromyalgia again
I have had Fibromyalgia since mid-2006, acquired during a long bout with a viral infection in my central nervous system. I used Neurontin, Percocet, Cymbalta, and Lyrica in the following 4 years to manage my…