I have found myself Lost in the Fog this week. I know that there really is no way that my non-fibromite friends & family will truly understand how it feels however I still find myself trying to explain it to them. My daughter almost ended up grounded because I did not remember a conversation that we had last night. I know what you are thinking – but she is a good kid so I knew…
Nayer: What was your life before fibro? It was very different than it is today. I was your typical type A perfectionist. My life was mostly about work. I was editor of a rapidly-growing weekly newspaper, and with that came a lot of deadlines and stress. I loved my job, but the pace of it began to wear on me after a few years. I admit I was bad about work/life balance, but I did…
What have you done due to fatigue? I was posting things I have done because of fatigue/”fibro fog”. After sharing my stories others began to share theirs. I saw myself in everyone of their stories. I know it makes me feel better to know that I am not alone. MY CONFESSIONS I stood in front of my office door pushing the button on my key wondering why it was not opening my door. It took…
Relationships can be difficult for healthy individuals. They are even harder when you add the complications of being in constant pain, severe fatigue, anxiety/depression and cognitive impairment. There are many types of interpersonal relationships. Some of the various types are friendship, family, and work. Fibromyalgia has changed all of my relationships. I have little energy to do the things that I used to do. I loved to go out and socialize. Now, I prefer to…
I am like most fibromites. I struggled to get someone to believe that there was something wrong and that my symptoms were not just “in my head.” Prior to being diagnosed with fibro, I racked up a list of diagnosed conditions / diseases. Once diagnosed with fibromyalgia, it all began to make sense. I looked at the lists of symptoms and found myself checking them off one at a time. As additional symptoms and conditions appeared,…
It is that time of year when school supplies are lining the store shelves and proud parents are posting first day of school pictures. I have said it time and time again that I am lucky because I have found the right combination of medicines, supplements & integrative therapies to be able to keep working outside of home. I LOVE my job. I work as a paraprofessional helping kiddos (English as a second language) ranging…
Waania Shamim is a young, enthusiastic woman who has lived with fibromyalgia, chronic pain, and chronic migraines for the last three years. She puts a positive spin on her life as a chronic pain patient and wants to help others feel better about their prognoses. Waania is on her way to becoming a wonderful advocate. Written in G ♯ minor and at 120 beats per minute, the synthetic sound that rocks with pop beats became…
Like most in the chronic pain community I was excited to hear that Lady Gaga was speaking out about her recent diagnosis of fibromyalgia. I have been hoping for years that the fibromyalgia/chronic pain community would have a celebrity spokesperson. It isn’t that I was hoping someone would get fibro but I was hoping that if they did they would use their celebrity status to shed some light on what most call the “invisible disease”.…
Miashy can be reached through her website Spoons to Share where she blogs and shares insights on how to find your faith within Fibromyalgia. She also offers complimentary consultations for those interested in exploring how they can find accommodations to help them observe their faith in a fibrofriendly way. Faith is another one of those difficult to approach topics. When I refer to faith in this blog, I refer to religion. Specifically, I am referring…
Alarm rings at 5 a.m. I jump out of bed to start making fresh blueberry muffins and the evening’s crock-pot dinner. Out the door by 6 a.m. for a full day (up to 10 hours) of work followed by whatever after school activity my kiddo had for the night. The night ends making sure our daughter’s homework is done, bath & bed, leaving me a few hours to pick up the house, play on the…