When people ask, I explain Fibromyalgia (“FMS”) as “experiencing pain where there’s no injury.” This is why it’s so difficult to treat.
Based on my experience, and that of about 50 other people with a connection to FMS that I’ve questioned over the years, I have believed for many years now that it is caused by trauma – physical trauma, like a car accident, or emotional trauma, such as a bad divorce, because the physical affects the emotional and the emotional affects the physical, they cannot be separated.
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Since most of the answers here are from three years ago, they cannot be judged in terms of validity as much in the scientific and medical communities can change in three years. Nonetheless, a common thread among many of them is their reference to stress, depression, and other maladies often caused by trauma.
As to the suggestion that genetics may be a cause, I think medical research will find, if it hasn’t already, that any connection to genetics is related instead to family dysfunction and the extent to which that may lead to a person being more susceptible to experiencing PTSD in situations that might not trigger PTSD in others, but even that is a stretch.
In the final analysis, I think research will find that FMS is not caused by genetics.
I had the hallmark symptom of FMS feeling bruised all over within weeks of the trauma-triggering event without knowing what it was, but it was 14 years before I awoke one morning with full-blown FMS. The intervening PTSD that lasted nearly all of that 14 years was so intense, both physically and emotionally, that, if I did have FMS sooner than that, I wouldn’t have known it.
I believe, instead, that it wasn’t until the severe PTSD (finally diagnosed in year 9) began to subside that FMS made its appearance. The following describes what I believe happened internally. It’s what makes sense based on all the things I was experiencing physically.
With trauma, the “fight-flight-freeze” response is triggered which releases adrenalin, but when this release of adrenalin continues for too long, the body/brain forgets how to turn it off.
As a result of this disruption in brain chemistry, the neurotransmitters become confused and end up super-sensitive, so the sensitivity to pain that some mentioned as a possible cause doesn’t cause FMS. It’s one of its consequences.
It’s my understanding that over the last year or so, the medical community has come to believe that trauma is the cause, but, as was the case in my situation, the trauma-triggering event can precede the appearance of FMS by years.
Of all the drugs and other treatment options I’ve tried, low-dose Methadone has worked the best, eliminating the weakness that, after 20 yrs. with FMS, seems to trouble me the most. If I could remain in motion 24/7, I wouldn’t have much difficulty at all. Guess that’s why I end up staying up all night so often.
I’ve noticed that, though the FMS has gradually subsided over the years except for the weakness and inability to sleep more than 2–4 hours, a flare can be easily re-triggered by stressful situations.
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