The best way is to accept it and moderate it in a moment-by-moment exercise. The stress of the “fight” will only make the pain worse for most with fibro. My new normal is that I am in pain every second of every day. I avoid unnecessary stressors which include movies and tv shows that are too intense. If a sporting event causes “tension and release” that is excessive for me, I stop watching. If a…
Fibromyalgia Conditions
Explore the conditions associated with Fibromyalgia, their symptoms, and how to manage them for improved well-being.
What’s one thing that helped your Fibromyalgia Pain?
For me, it was addressing the root cause of the illness: heavy metal toxicity. I had 8 dental amalgams as well as a couple of root canals. I used to get vaxxed. I ate a lot of fish. I had some imaging with contrast dyes. Nowadays everyone is exposed to multiple heavy metals. So once I had the amalgams safely removed that was a huge step forward I have been working on getting my body’s…
Is Fibromyalgia just a throw-away Diagnosis when they can’t figure out what’s wrong?
I don’t know what it takes to make a fibromyalgia diagnosis because I don’t trust science’s model to describe and assess what the phenomenon really is. They do more harm when they label human beings with all kinds of “disorders”. Those assumed disorders become something that human beings wrongly identify with, later on in their lives, which render them unable to truly ever transcend their condition. Simply because they have grown to identify with it.…
Do doctors often misdiagnose patients with Fibromyalgia instead of conducting further testing?
Unfortunately not only is Fibromyalgia comorbid with other conditions, but its symptoms can also mask other issues. There’s no definitive test as it doesn’t show up in blood work so it’s diagnosed by clinical evaluation. When I was diagnosed with Fibromyalgia, I had been experiencing widespread pain (one of the symptoms/criteria) for years, but due to being a teenager, was told it was “growing pains”. It wasn’t. Other criteria they use are trigger points that,…
If you have Fibromyalgia, do you remember having been ill with some manner of the virus within a few weeks of developing Fibro?
I have Fibromyalgia. My father drank heavily in the 1960s and both my parents smoked tobacco when I was conceived. As a child, I frequently had strep throat, bronchitis, and even pneumonia. Even at 2 two years old I remember being inside the incubator seeing the outline of my Mom and my uncle who came in to visit. My teeth are stained from taking the antibiotic, Tetracycline as a young child. As I understand it…
What percent of Fibromyalgia patients don’t respond to any of the commonly used Medicines?
You know this is the craziest thing I am going to talk about now… I’m not sure what the percentage is, but I can tell you that I spent years taking Adderall for ADHD and then had to stop taking it when I got pregnant. During the hiatus from that medication, I was diagnosed with fibromyalgia. After unsuccessful attempts at treating it with many of the same methods you mentioned, I decided that I was…
How would you decide if a diagnosis is Chronic Fatigue Syndrome or Fibromyalgia?
Get your genes mapped. If you have either fibromyalgia or chronic fatigue it is probably most likely due to “Soft Tissue Calcification” which is caused by the body not excreting enough sulfur and phosphorus, which is caused by having genetic mutations like CBS 699 and SUOX mutations. The treatment for these mutations right now is to eat a diet that is very low in sulfur and phosphorus and calcium and vitamin D because these will…
Why is there such a strong Stigma with Fibromyalgia patients?
Medical professionals roll their eyes at the thought of them. I am interested in opinions from both sides. I think a big part of it is that the medical profession doesn’t want to admit how much they still don’t know, both in terms of treating illness or even identifying it in the first place. There is a perception that we are so advanced with science, we have all these amazing tests and treatments now. So…
How much of the Psychological pain causes Physical pain and vice versa with Fibromyalgia?
I saw an answer from a physician, but mine comes from personal experience from fibro (8 years and counting). It’s not a simple answer, unfortunately. Fibromyalgia, for me, is a reactive condition. What that means for me is that I have a constant level of pain that is my day-to-day pain level. It’s usually somewhere about a 4 or a 5. If it’s a little lower, that’s a fantastic day, but I can survive with…
If you suffer from Fibromyalgia does it hurt you to wear all types of clothes or only certain fabrics?
Diagnosed 10 years ago. Every day is a new mystery I am ridiculously picky about my clothes, since mild to moderate Allodynia is one of my Fibromyalgia symptoms. No sleeves of any fabric, soft fleece if I need a jacket. No bra. Between allodynia and costochondritis? Let them tiddies sag. I like breathing with less pain and not getting rashes. Screw the rules. No wool, cashmere, or other animal fibers. When they are cut, they…