How do you deal with the pain of Fibromyalgia when you’re allergic to most of the Pain Medicines?
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How do you deal with the pain of Fibromyalgia when you’re allergic to most of the Pain Medicines?

My 16 years of experience facing Fibromyalgia and 30 years of CFS Pain medications taken too often can lead to a pain cycle, where every time you take an analgesic, the pain will come back sooner and stronger. Once you are there, you have to stop all painkillers completely. I just had my cycle restarted by a week in the hospital where they gave me Tylenol every 6 hours. That’s a whole bottle of Tylenol…

How do you deal with the pain of Fibromyalgia when you’re allergic to most of the Pain Medicines? Read More
What happens if Fibromyalgia is left Untreated?
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What happens if Fibromyalgia is left Untreated?

Although fibromyalgia symptoms are often written off as being sleepy, it’s really a much more serious disorder than it seems. With over 5 million Americans over the age of 18 diagnosed with Fibromyalgia, fibromyalgia requires more treatment than just taking a nap. Finding the right treatment depends on the individual, but the risks of not treating Fibromyalgia at all can be devastating and more dangerous. Worsening Symptoms A major risk of leaving fibromyalgia untreated is…

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How do I make my husband see, that his lack of belief and support in my Fibromyalgia Condition is damaging to our relationship?
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How do I make my husband see, that his lack of belief and support in my Fibromyalgia Condition is damaging to our relationship?

There’s only one thing you can do: educate, educate, and educate. Show him websites about it, tell him about it, explain to him how it influences your life. There’s only one thing you can do if he refuses to listen: just leave him. I’ve got an invisible and untraceable illness too. Mine is called Ehlers Danlos and due to firstly the limited amount they know about it, secondly the fact that they decided to diagnose…

How do I make my husband see, that his lack of belief and support in my Fibromyalgia Condition is damaging to our relationship? Read More
Why is Fibromyalgia so poorly understood by the Medical world?
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Why is Fibromyalgia so poorly understood by the Medical world?

IMHO, I blame two things. Misogyny, and a lack of high-tech diagnostic tools. Misogyny: 95% of sufferers are women over “a certain age”! A lot of the medical cohort, particularly the senior ones were and still are male. Recent studies have shown that even today, a woman with chest pains, is more likely to be discharged than a man, and as a result, more are dying from heart attacks! Men don’t take women’s reports of…

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I’m 22 and considering getting a cane for days when my Fibromyalgia Flares up
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I’m 22 and considering getting a cane for days when my Fibromyalgia Flares up

How do I be confident using the cane in public when I look like an otherwise healthy, able-bodied person? I can’t give you a direct definite answer to your question. But I will share a couple of things with you. When my oldest daughter was 13 she had surgery for scoliosis. She walked back to the surgery suite turning back, smiling and waving. Totally secure in what she was doing. 13 1/2 hours later they…

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Declaring your Fibromyalgia, I hope no one you know ever has this awful syndrome.
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Declaring your Fibromyalgia, I hope no one you know ever has this awful syndrome.

Seem like? I hope no one you know ever has this awful syndrome. It affects your muscles, your nerves, and your brain. The pain is intense and fluctuates with the only blessing being there is no visible tissue damage. The brain has much higher cortisone levels with less relief and the signals between neurotransmitters get glitchy increasing difficulties such as muscles losing reaction time or function but luckily these as temporary and intermittent. One minute…

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Why isn’t Fibromyalgia taken more seriously?
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Why isn’t Fibromyalgia taken more seriously?

It’s not taken seriously for many reasons. They’ve been doing more and more research on it but it’s very complex. Some of the medical community claims it’s a rheumatological issue like lupus or rheumatoid arthritis. Some claim it’s all in our brains and faulty nervous systems. Some claim it’s a virus like Epstein-Barr. It’s usually the last thing you’re diagnosed with when they can’t seem to find out what’s wrong through many tests, X-rays, MRIs,…

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What does Fibro Fog feel like in Fibromyalgia?
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What does Fibro Fog feel like in Fibromyalgia?

Like you have the flu constantly. Affecting your concentration and memory. And the pain itself is very distracting and tiring. Generally just feeling physically tired all the time. Sometimes worse than others. Numerous fibromyalgia symptoms come and go. From hour to hour your symptoms change. Often ith little reason. Other symptoms can last for years. Allergies can be very problematic. Sometimes with chronic inflammation. And chronic pain can lead to clinical depression. The symptom of…

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Do you find it difficult to solve problems when your Fibromyalgia Flares up?
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Do you find it difficult to solve problems when your Fibromyalgia Flares up?

I have lived with Fibromyalgia for 30 years. The answers to this question are true and help to explain some of the new symptoms I’m experiencing. For example, when I stand up, I’m dizzy and have to be very careful or I walk into walls or furniture or trip and fall down. Everyone has been blaming this on the medication I take for depression and pain but when I look them up, dizziness is not…

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Is Central Sensitization the same as Fibromyalgia?
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Is Central Sensitization the same as Fibromyalgia?

Let’s remember that despite all of our great science, we don’t fully understand either central sensitization or fibromyalgia. So the question is cute but unanswerable. Central sensitization means that there is altered processing of sensation in the spinal cord and brain. Imagine you have an mp3 player and you plug it into an amplifier and then to some speakers. The mp3 player is like the tiny signals coming **constantly** from the nerves that touch all…

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