Introduction: Stephanie’s Story – Turning Pain into Power Complex Regional Pain Syndrome (CRPS) is often called the “suicide disease” because of its unrelenting and excruciating pain. But for Stephanie, her journey with CRPS became a story of resilience, hope, and transformation. In this exclusive testimonial, Stephanie opens up about her life-changing experience — from the devastating onset of symptoms to discovering strength she never knew she had. The Day Everything Changed: Stephanie’s First Encounter with…
Fibromyalgia Awareness
Raise awareness about Fibromyalgia by understanding its symptoms, impact, and the importance of support for those living with this chronic condition.
The Chaotic Trio: How POTS, Fibromyalgia, and Ehlers-Danlos Throw an Uninvited House Party in Your Body
Introduction: When Chronic Illnesses Crash the Party Without Warning Living with just one chronic illness is tough enough — but when Postural Orthostatic Tachycardia Syndrome (POTS), Fibromyalgia, and Ehlers-Danlos Syndrome (EDS) show up together, it feels like an uncontrollable house party raging inside your body. None of them were invited. None of them plan on leaving. And together, they turn daily life into a whirlwind of pain, exhaustion, and unpredictability. This article dives deep into…
Breaking the Silence: My Bold Response to Anyone Who Medically Gaslights Me About Fibromyalgia
Introduction: The Power of Owning Your Truth with Fibromyalgia Living with fibromyalgia is already a daily battle with chronic pain, fatigue, and unpredictable symptoms. But for many people, there is another layer of struggle — dealing with medical gaslighting. When doctors, nurses, or even friends dismiss or minimize fibromyalgia symptoms, it can feel like an invisible war on both body and mind. This article is a bold and unapologetic reflection for anyone who has ever…
Veterans: Unlocking VA Benefits — How to Get Approved for Fibromyalgia as a Secondary Condition to PTSD
Introduction: A New Hope for Veterans Battling Fibromyalgia and PTSD Many veterans return from service carrying not only visible wounds but also invisible battles like Post-Traumatic Stress Disorder (PTSD). Over time, some of these veterans begin experiencing chronic pain throughout their bodies — pain that doctors may later diagnose as fibromyalgia. What many veterans do not know is that fibromyalgia can be claimed as a secondary condition to PTSD under the Department of Veterans Affairs…
26 Silly Things People Forgot About Because of Fibro Fog That Will Make You Laugh and Relate
26 Silly Things People Forgot About Because of Fibro Fog Fibromyalgia can come with a long list of symptoms, but one of the most frustrating—and often unexpectedly funny—is fibro fog. This mental cloudiness can make simple tasks feel like solving a riddle. You forget words, misplace items, and sometimes even forget what you were doing mid-sentence. It’s a daily challenge, but it also brings moments of humor that only those who’ve experienced it truly understand.…
7 Surprising Truths When Celebrities Talk About Chronic Illness That Everyday Spoonies Know Too Well
When Celebrities Talk About Chronic Illness, Don’t Forget About Everyday Spoonies When celebrities talk about chronic illness, headlines follow. Social media buzzes. Interviews go viral. For a brief moment, the world listens. But as the attention fades, what remains for the millions of people who live daily with invisible conditions? These individuals, known lovingly in the chronic illness community as “spoonies,” are often left behind in the narrative, quietly managing symptoms, navigating medical systems, and…
Why This Type of Weather May Be the Best for People With Fibromyalgia, According to Experience
The Best Weather for People With Fibromyalgia Fibromyalgia is a complex condition, marked by chronic pain, fatigue, and sensitivity to a wide range of triggers—including the weather. For many people living with fibromyalgia, the environment plays a noticeable role in how their symptoms flare up or ease down. From damp cold mornings to sweltering hot afternoons, climate can either be a silent ally or an unwelcome foe. But is there truly a “best” weather for…
No One Tells You About Not Feeling ‘Disabled Enough’ When You Live With a Chronic Illness
When I Don’t Feel ‘Disabled Enough’ as Someone With a Chronic Illness There’s a quiet struggle that many people with chronic illness carry—a tension that rarely makes its way into conversations, even within disability communities. It’s the feeling of not being “disabled enough.” You live with pain, fatigue, or a body that doesn’t work like it used to, but you look in the mirror and wonder if you qualify. You walk through life managing symptoms…
Why Spoonies Need to Forgive Themselves for Not Sticking to a Routine and Embrace Flexibility Instead
Dear Spoonies, It’s Time to Forgive Yourself If You Can’t Keep a Routine For many, routines are the backbone of success. Wake up early, exercise, plan your meals, check your goals. The world praises discipline, consistency, and structure. But for spoonies—those living with chronic illnesses—the pressure to maintain a perfect routine can feel not only overwhelming but impossible. When your energy is limited, your symptoms unpredictable, and your body often working against you, sticking to…
What I Really Mean When I Say I’m Having a Fibro Flare-Up Might Surprise You
What I Mean When I Say I’m Having a Fibro Flare-Up There’s a moment when the words leave my mouth and I brace myself for the response. I say, “I’m having a fibro flare-up,” and I can already see the confusion in someone’s eyes. Maybe they nod sympathetically. Maybe they change the subject. Or maybe they ask, “What does that mean?” The phrase is short and simple. But the reality behind it is anything but.…