Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia
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Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia

To my friends and family who don’t have fibromyalgia, I know it’s hard to understand what I go through. I know there are days when I seem distant, fragile, or completely different from the person…

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Voices That Heal: The Power of Sharing Our Fibromyalgia Stories
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Voices That Heal: The Power of Sharing Our Fibromyalgia Stories

Living with fibromyalgia can feel like carrying a weight that no one else sees. The pain is real, but invisible. The fatigue is constant, but misunderstood. The emotional toll builds quietly, often behind a forced…

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Young But Real: I Am 18 and Fibromyalgia Ill, and My Pain Is Just as Valid
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Young But Real: I Am 18 and Fibromyalgia Ill, and My Pain Is Just as Valid

Being eighteen is often described as a time of new beginnings, independence, and endless possibility. For many, it marks the start of adult life with dreams waiting to unfold. But for some of us, eighteen…

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Double the Storm: What It’s Like Going Through Perimenopause With Fibromyalgia
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Double the Storm: What It’s Like Going Through Perimenopause With Fibromyalgia

Living with fibromyalgia already feels like a full-time battle—one that requires constant adjustments, relentless strength, and a deep understanding of your own body. But when perimenopause enters the picture, it brings a second wave of…

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11 Hard Realities: When My Long-Term Disability Was Revoked Because I ‘Don’t Look Sick’
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11 Hard Realities: When My Long-Term Disability Was Revoked Because I ‘Don’t Look Sick’

When My Long-Term Disability Was Revoked Because I ‘Don’t Look Sick’ I never imagined that having an invisible illness would mean I’d have to fight to prove my suffering to strangers. I never thought I’d…

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Infection is Root Cause by Fibromyalgia: Exploring the Link Between Chronic Illness and Pathogens
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Infection is Root Cause by Fibromyalgia: Exploring the Link Between Chronic Illness and Pathogens

Fibromyalgia is a chronic pain disorder characterized by widespread musculoskeletal pain, fatigue, sleep disturbances, and cognitive dysfunction (brain fog). Despite decades of research, the exact cause of fibromyalgia remains unknown. However, one emerging theory suggests…

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12 Truths No One Tells You About Fearing New Symptoms With Fibromyalgia
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12 Truths No One Tells You About Fearing New Symptoms With Fibromyalgia

When You Fear Developing New Symptoms With Your Fibromyalgia Living with fibromyalgia means living with unpredictability. Each day, your body might speak a different language. Pain, fatigue, brain fog — these are familiar companions. But…

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10 Unspoken Reasons Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse
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10 Unspoken Reasons Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse

Why I’m Retiring From Advocacy as a Queer, Disabled Survivor of Abuse There comes a time in every journey when continuing forward no longer feels brave — it feels like survival without self. For years,…

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7 Powerful 2021 Sundance Films That Nailed Authentic Disability Representation
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7 Powerful 2021 Sundance Films That Nailed Authentic Disability Representation

The 2021 Sundance Film Festival offered a refreshing and long-overdue spotlight on stories that reflect the real world — including authentic disability representation. In a media landscape that often excludes or misrepresents disabled individuals, Sundance…

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Dismissed by Words: What It Feels Like When I’m in Pain and Someone Says, ‘That Didn’t Hurt’
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Dismissed by Words: What It Feels Like When I’m in Pain and Someone Says, ‘That Didn’t Hurt’

Pain is personal. It’s intimate. It’s rooted in the unique wiring of a body and the lived experience of the person inside it. So when I’m in pain and someone says, “That didn’t hurt,” the…

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