Beyond What They See: I Used to Wish My Pain Was Visible, but It’s Not That Simple
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Beyond What They See: I Used to Wish My Pain Was Visible, but It’s Not That Simple

There was a time when I found myself quietly wishing that my pain had a face the world could see. I wanted a cast, a bandage, a visible marker—anything that could communicate to others what I was enduring. Living with an invisible illness often means your suffering is questioned, minimized, or outright ignored. So it seemed logical that if my pain were visible, I’d be believed. I’d be supported. I’d be understood. But as I’ve…

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The Truth Isn’t Negative: Am I Being ‘Negative’ By Admitting My Reality With Chronic Illness?
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The Truth Isn’t Negative: Am I Being ‘Negative’ By Admitting My Reality With Chronic Illness?

Living with chronic illness means carrying a truth that is often invisible to the world. It means waking up in pain, navigating unpredictable symptoms, and silently adjusting to limitations that others may never see. And yet, when we try to express that truth—whether through conversation, writing, or simply answering “how are you?” honestly—we’re often met with discomfort, dismissal, or even accusations of being negative. So the question arises: Am I being ‘negative’ by admitting my…

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How Selma Blair and Her Cool Canes Are Quietly Revolutionizing Disability Acceptance
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How Selma Blair and Her Cool Canes Are Quietly Revolutionizing Disability Acceptance

How Selma Blair and Her Cool Canes Support Disability Acceptance Selma Blair, a celebrated actress known for her roles in film and television, has become a powerful figure in disability advocacy—not just through her words but through her visible and stylish use of mobility aids. Diagnosed with multiple sclerosis (MS), Blair has embraced her journey with honesty and grace, challenging long-standing stereotypes about what it means to live with a disability. Perhaps one of the…

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Defying the Darkness: Why I Won’t Allow Fibromyalgia Pain to Take Away My Dreams
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Defying the Darkness: Why I Won’t Allow Fibromyalgia Pain to Take Away My Dreams

I Won’t Allow Fibromyalgia Pain to Take Away My Dreams I won’t allow fibromyalgia pain to take away my dreams—not because it’s easy, but because my dreams are part of what keep me alive. Fibromyalgia may have taken my comfort, my energy, and some of my plans, but it will not take my passion, my hope, or my purpose. Pain may be a part of my life, but it is not my entire identity. Living…

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Ending the Doubt: 7 Reasons Fibromyalgia Warriors Must Stop Policing Each Other’s Pain
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Ending the Doubt: 7 Reasons Fibromyalgia Warriors Must Stop Policing Each Other’s Pain

Fibromyalgia Ill People, Let’s Stop Accusing Others of Faking Their Illnesses Fibromyalgia ill people, let’s stop accusing others of faking their illnesses. Living with fibromyalgia is already an uphill journey—navigating misunderstood symptoms, social stigma, and the constant fight for validation. The last thing anyone in this community needs is judgment from within. Yet, it happens. One patient questions another’s diagnosis. Someone comments that another person “doesn’t look sick enough.” Distrust grows, and with it, division.…

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Silent Epidemic: Why It’s Time to Talk About the Scary Misdiagnosis Rate Women Face in Healthcare
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Silent Epidemic: Why It’s Time to Talk About the Scary Misdiagnosis Rate Women Face in Healthcare

For decades, the healthcare system has been failing women in ways that are often invisible until it’s too late. Among the most serious and overlooked issues is the alarming misdiagnosis rate women continue to face. From delayed treatments to outright dismissal of symptoms, this problem is more than a clinical error—it’s a systemic issue that affects the lives, health, and dignity of countless women. The Uncomfortable Truth Behind Misdiagnoses When a woman walks into a…

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Raw and Real: The Vulnerability of Dating While Living With Fibromyalgia
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Raw and Real: The Vulnerability of Dating While Living With Fibromyalgia

Dating can be a rollercoaster of emotions for anyone, filled with hope, excitement, uncertainty, and self-reflection. But when you live with fibromyalgia, that rollercoaster becomes more complex, layered with fears about being misunderstood, judged, or even rejected. The vulnerability of dating while being a fibromyalgia sufferer runs deep, touching every part of the emotional and physical experience of connection. Navigating the First Conversations The early stages of dating are full of questions. What do you…

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Bruised But Breathing: Because of Trauma, I Often Hate My Body – And That’s My Truth
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Bruised But Breathing: Because of Trauma, I Often Hate My Body – And That’s My Truth

Some wounds don’t bleed. They don’t show up on skin or in scans. They live beneath the surface, in silence and shame. For many survivors of trauma, one of the hardest, most unspoken struggles is the fractured relationship with their own body. This is mine. Because of trauma, I often hate my body. And that’s not a metaphor. It’s a fact I’ve had to face, over and over again. The Body Becomes a Battlefield Trauma…

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The Stillness Between Storms: What Living With Fibromyalgia Taught Me About Waiting
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The Stillness Between Storms: What Living With Fibromyalgia Taught Me About Waiting

Waiting is something most people dislike. Waiting in traffic, Waiting in line, Waiting for life to pick up speed. But for those living with chronic illness—especially fibromyalgia—waiting becomes a central part of existence. It’s not a pause before the action. It is the action. What living with fibromyalgia taught me about waiting has shaped the way I see time, purpose, and even myself. The Wait for a Diagnosis Before I could even begin to live…

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Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia
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Between Us: A Letter to My Friends and Family Who Don’t Have Fibromyalgia

To my friends and family who don’t have fibromyalgia, I know it’s hard to understand what I go through. I know there are days when I seem distant, fragile, or completely different from the person you used to know. And while I’ve tried to explain, I realize that chronic illness can be difficult to truly grasp unless you’re living it. So I’m writing this not to make you feel sorry for me, but to invite…

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